Don't hesitate to give us a ring- you can always leave a message
47 Longfield Road
Tel: 0117 3735 733
Based Sarasota, Florida. A powerhouse behind much current WM research. Has a comprehensive international website and very efficiently will mail a newly diagnosed pack to UK without charge (or we can order one up for you) . They will really appreciate donations and subscriptions to cover the cost of supporting UK patients. WMUK works closely with the IWMF.
They run a yearly Education Forum in the USA (Tampa, Florida in 2014) where UK patients are very welcome and sponsor research in WM and biennial European meetings. They have a worldwide list of support groups. Their Talkline is an invaluable source of information and their magazine 'The Torch' is excellent- available preferably online or postally in English (and French). Click here to find the latest available edition.
European Waldenstrom Network - Umbrella organisation of European Support Groups. Lobby for treatment, encourage formation of support groups and advocacy at European Level. Promote joining clinical trials. Also a new multilingual site for those wanting to start support groups in EU countries. www.waldenstrom.info The main site is at www.ewmnetwork.eu
For more details see the links page