WMUK Media Centre

WMUK Media Centre

Videos, Photos, Key papers and useful articles

New WMUK Guide to WM

New WMUK Guide to WM

17-Jul-2017
Download the new guide to WM written by Dr Shirley D'Sa, Consultant at University College Hospital, London. UCLH is the largest centre for Waldenstrom treatment in the UK

Coping with WM Diagnosis- Seb's Video Tale

Coping with WM Diagnosis- Seb's Video Tale

05-Jul-2017
This Patient Tale Video gives a really useful insight in coping with a WM diagnosis, particularly in younger patients with careers and young families. This is produced by http://www.kindeo.com/ a website which lets patients tell their life changing stories.

November 2106 e newsletter

November 2106 e newsletter

25-Nov-2016
E newsletters- if you have signed up and are not getting regular newsletters, please let us know. Don't forget to check you spam box and make WMUK a trusted source.

November 2016 e-newsletter

November 2016 e-newsletter

21-Nov-2016
Download the latest newsletter about trials, transplants London Marathon and more!

February 2106 E newsletter

February 2106 E newsletter

27-Feb-2016
February 2016 e newsletter. You should have received by email if registered before 26th February 2016. If not please contact us to ensure you receive it automatically in future!

WM Clinical News

WM Clinical News

01-Jan-2016
Designed for doctors, nurses, pharmacists and researchers. Contains news of the clinical day on the 16th March at the Royal Free. You can book on-line by going to 'buy items and book events' on the home page.
In Word Format. Please distribute to any other interested clinicians.

VIDEO:Neuropathy in WM Dr Mike Lunn

VIDEO:Neuropathy in WM Dr Mike Lunn

19-Nov-2015
Dr Michael Lunn, one of the leading specialists in treating neuropathies associated with WM at Queens Square, UCLH, outlines their causes and treatment at IWWM8, London 2014. A very through introduction.

How I treat WM- 2015 by Steve Treon

How I treat WM- 2015 by Steve Treon

11-Nov-2015
A new detailed account of how Dr Steve Treon treats WM at Dana-Farber in the USA

Summer Newsletter 2015

Summer Newsletter 2015

20-Jul-2015
New Newsletter including trial, EMA approval for Ibrutinib and much more.

Appeal for the Rory Morrison WM Cancer Clinical Registry

Appeal for the Rory Morrison WM Cancer Clinical Registry

05-Aug-2014
Broadcaster and WMUK Patron Charlotte Green launches the appeal for £26,000 for the Rory Morrison WM Clinical Cancer Registry. The target has been raised but we now need to raise £5,000 a year for maintenance, and £20,000 for the linked biobank (tissue bank) at University College Hospital, London help us raise this amount now! Find out more about Rory, Charlotte and the appeal in the video below.

Dana- Farber article on genetic mutations in WM

Dana- Farber article on genetic mutations in WM

01-Apr-2014
Steve Treon is the lead author for this latest information about the genetics of WM. Includes MYD88 and CXCR4 plus the evolving small molecule treatments for WM

UK Treatment Guidelines 2014

UK Treatment Guidelines 2014

15-Mar-2014
The 2014 UK treatment guidelines have been published and can be downloaded from this site

Dr Bob Kyle presentation on understanding your blood tests, MGUS and Smouldering WM

Dr Bob Kyle presentation on understanding your blood tests, MGUS and Smouldering WM

05-Feb-2014
Video of Dr Bob Kyle's (of the Mayo Clinic, Rochester, USA) presentation at the WMUK London Doctor Patient - Forum in March 2013. An excellent summary of understanding your blood tests and of some of the early stages of WM. About 40 minutes. The two disc DVD set of the Forum containing all presentations is still available - order on this site.

New USA Treatment Guidelines for WM

New USA Treatment Guidelines for WM

19-Jan-2014
These technical treatment guidelines are the NCCN Clinical Practice Guidelines in Oncology 2014.
The document contains the first use if Imbruvica in clinical practice. Good summaries of treatment strategies. Written by Kenneth Anderson and Steven Treon.

Bing Centre

Bing Centre

17-Dec-2013
(Harvard) November Newsletter

Hyperviscosity in WM

Hyperviscosity in WM

17-Dec-2013
Clinical paper by Dr Shirley D'Sa (featured in the Torch Jan 2012)

Gift Aid Form - we can claim back your tax if you make a donation to WMUK

Gift Aid Form - we can claim back your tax if you make a donation to WMUK

17-Dec-2013
If you are a UK taxpayer we can reclaim an extra 25% from HM Government if you fill and return this form (email is fine). Many thanks for your support.

How does NHS accept a new medicine? Dr Iain Purchase

How does NHS accept a new medicine? Dr Iain Purchase

01-Aug-2013
Patient Dr Iain Purchase has produced this straightforward guide for WMUK to show how new medicines are approved in the UK.

UK draft WM treatment guidelines video

UK draft WM treatment guidelines video

01-May-2013
(MP4) 26 minutes by Dr Roger Owen from Forum 2013. This and other forum presentations are on the 2 disc DVD set which you can still buy. The finished article from the British Journal of Haematology can be viewed online or downloaded- see details below.

Dr Steven Treon's Powerpoint Presentation at the 3rd forum 2012

Dr Steven Treon's Powerpoint Presentation at the 3rd forum 2012

13-Mar-2013
The presentation video is on the 2012 DVD