I’ve been told by my doctor it’s so rare that I'm unlikely to ever meet another patient - what can I do?

Although a rare disease it’s one of a family of 21 other non Hodgkin lymphomas and there has been a huge amount of research into these B cell diseases. WM is in fact by no means the rarest, with 8 per million of the population diagnosed each year.  UK Fora run by WMUK can attract 150 patients, and It's likely there is one within 30 miles of you.  Get on the WMUK online forum here to find them!