Tue, 21 Nov|
WM & ME webinar
Join us for our live webinar on Tuesday 21 November from 7-9pm to explore how you can get involved in our ground-breaking WM & ME research.
Time & Location
21 Nov 2023, 19:00 – 21:00
About the event
Join us for our live webinar on Tuesday 21 November from 7-8pm to explore how you can get involved in our ground-breaking WM & ME research.
The webinar will be led by WM patients Charles Lilly and Simon Byerley - giving their first hand experience as WMers of the benefits for patients now and in the future - with our friends at Sanius Health on hand to answer all your questions.
Together we’ll explore:
· Why the WM & ME research project is so important
· How your data is collected and safely used
· What benefits patients can expect
What is WM & ME?
Through WM & ME, WM patients get a FREE smartwatch to record their daily symptoms and general health in a specially designed app.
The information collected will be used by clinicians and researchers to better understand the condition, so they can develop more treatments and, potentially, a cure.
At the moment, because WM is so rare, there is a lack of data to drive innovation into new therapies. This is why WM & ME is so important.
The insight provided through the research is the missing ingredient to improving lives of everyone living with and impacted by WM.
We understand that the word, ‘data’ can be daunting. So, through the webinar we’ll be exploring exactly what information is captured, how it is stored, and what it will be used for.
During the webinar, there will be plenty of opportunity to ask questions and explore the implications this will have for you and your unique situation.