WMUK Events

Patient Doctor Summit 2018

When: Sunday 1st July 2018 | Where: Royal Sociery of Medicine 1 Wimpole Street London W1G 0AE

Final Call for the London Summit Sunday 1st July 2018

Agenda London 2018-Final.pdf

To download a pdf of the programme (the one below may not display correctly on your mobile) which you can also print, click Here

TO BOOK click here!

Doctor – Patient SUMMIT

Sunday 1 July 2018

Royal Society of Medicine, 1 Wimpole Street London W1G 0AE 

MORNING SESSION (Chair Dr Shirley D’Sa)

9.00Registration, coffee and meeting each other- Main foyer.

Sign up for Ask-The-Doctor Lite (breakout) sessions!

9.30 Welcome & Introduction

Mr Roger Brown, Chair WMUK Charity

9.40 Waldenström's: the disease and its complications: setting the scene

Dr Shirley D’Sa, UCLH Centre for Waldenström’s and Related Conditions

10.10Watch and wait (not worry!): the psychology of living with WM

Dr Iain Jordan, Consultant in Psychological Medicine, Oxford University Hospitals

10.45 Questions to doctor panel

11.00 Coffee Break

11.30 WM Treatment 1: Options for the newly diagnosed

Dr Rebecca Auer, St Bartholomew’s Hospital, London

11.50 WM Treatment 2: Options at relapse including stem cell transplants

Dr Guy Pratt, University Hospitals Birmingham

12.10Update on clinical trials

Dr Helen McCarthy, Royal Bournemouth Hospital & Dr Jaimal Kothari, Oxford University Hospitals

12.30 Questions to doctor panel

1-1.45 Buffet Lunch (Included in fee)

AFTERNOON SESSION (Chair: Dr Harriet Scorer)

1.45 Patients’ perspectives of WM

Informal accounts of patients’ experiences of living with WM

2.45Frontiers of treatment: CAR-T therapy- driving forward progress: when will WM get a look in?

Dr Claire Roddie, Clinician-Scientist, UCL CAR-T Programme

3.15 Questions to panel

3.30Tea break followed by Ask-The-Doctor Lite: select sessions

These sessions will be run twice so that you can attend 2 sessions of your choice.

Session 3.45-4.15 repeated 4.30-5.00 Moderators Location
1 Newly diagnosed/ W&W/ initial treatment Dr Guy Pratt Dr Dima El Sharkawi (Consultant, Royal Marsden) Mr Will Franks  
2 Complications of WM/ Relapsed WM/ when and how to treat Dr Chara Kyriakou Dr Helen McCarthy  
3 Ibrutinib- doctor and patient view Dr Shirley D’Sa Mr Simon Russell  
4 Self-management   Dr Iain Jordan Flora Dangwa (Lecturer Practitioner, Royal Marsden) Dr Harriet Scorer


Colin Rainford

This stand will be open throughout the afternoon- you can pop in at your convenience Learn about the Rory Morrison Registry & Biobank Project And leave some DNA behind! **Patients will have the chance to offer their consent to enrol on the UCLH WM Biobank Project and spit into a tube for DNA extraction** Dr Joshua Bomsztyk, UCLH      

5.00 Close

WMUK has a policy that nobody should be excluded from support due to their circumstances. If you genuinely feel that paying is a problem (for instance if you want to bring a large family group), please raise a confidential note via the website, or email us with your circumstances and Trustees will look sympathetically at your request.

There is a dinner get together and reception for doctors, patients, supporters and at the Mandeville Hotel near by on Saturday Evening, the 30th June.  Cost including wine £36. If you would like to attend (numbers are limited) send an email NOW  to Roger at info@wmuk.org.uk and make a payment of £36 via our website.

Accommodation on Saturday Night: our Trustee Will Franks recommends:

Durrants Hotel is quite close by. I’ve used in many times as its cheaper than most. They are quoting £176 for a double on the website but may be willing to offer a discount. There is also a B&B called 22 York Street that I’ve used before and is good. A little further away (15 mins walk) but still walkable. A double is £150 there.

TO BOOK Summit  click here