Over 150 delegates attended the annual WMUK Patient – Doctor Summit at the King’s Fund, London on Saturday 6 July 2019 – our largest Summit so far. WM patients, their supporters, expert doctors, and representatives from other blood cancer charities came together to hear presentations and panel discussions; to ask questions of the experts; and take part in small group sessions to share experiences.
Highlights of the day included an early-bird session on Understanding WM by Dr Shirley D’Sa from University College London Hospital which hosts the largest WM clinic in the UK. Delegates then enjoyed a session focused on the psychological aspects of living with WM. There were entertaining, inspiring and upbeat presentations from Oxford-based psychiatrist Dr Iain Jordan and WM patient Bob Perry who talked about how setting up a WM support group helped him cope with his diagnosis. The morning session concluded with a panel discussion about the WMUK Rory Morrison Registry and the work it is doing to support the collection of data about WM patients’ experiences of treatment, including ibrutinib.
The afternoon gave patients and their supporters the opportunity to meet others in small group sessions, as well as book into an individual 5 minutes session with one of the WM expert doctors who were present throughout the day. A parallel session focused on What’s New in WM, with speakers including Dr Roger Owen from Leeds giving informative presentations about new treatments and clinical trials.