# LLMs.txt Site Title: WMUK Description: The UK charity supporting those affected by Waldenstrom's macroglobulinaemia ## Pages and Posts - [Spring Well-Being: A Fresh Start for Mind, Body and Home](https://www.wmuk.org.uk/2026/05/spring-well-being-a-fresh-start-for-mind-body-and-home/): Spring is the perfect time to pause, reset and make space for simple moments of wellbeing each day to help you feel refreshed in mind, body and home. FOR THE MIND Take a mindful moment A few minutes of quiet breathing or meditation each day can help to reduce stress. We offer monthly Yoga and... - [Our History](https://www.wmuk.org.uk/about-wmuk/our-history/): WMUK's History Founded in 2012 by a small group of dedicated volunteers, WMUK has evolved to become the UK's only charity dedicated to people living with Waldenström's macroglobulinaemia and lymphoplasmacytic lymphoma.In little more than a decade, we have established world-first services, shaped national policy, and built a community where no one faces this rare and... - [DemoW4W](https://www.wmuk.org.uk/demow4w/): Walk for Waldenstrom’s Get active and help us raise £15,000 so our expert nurses can continue to provide a lifeline of support. Register Now What’s it all about? Walk for Waldenstrom’s this Spring and every penny you raise will help fund the world’s only nurse-led Support Line. Together, we can ensure our expert nurses can... - [WMUK Extends Support to Include Those Living with Non-IgM Lymphoplasmacytic Lymphoma (LPL).](https://www.wmuk.org.uk/2026/04/wmuk-extends-support-to-include-those-living-withnon-igm-lymphoplasmacytic-lymphoma-lpl/): WMUK is extending its support services to include all people affected by all types of lymphoplasmacytic lymphoma( LPL). - [Liz's LPL Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/lizs-lpl-story/): How WMUK Helped Me Navigate My LPL Diagnosis When Liz Came was diagnosed with non-IgM lymphoplasmacytic lymphoma (LPL), she was left with more questions than answers. Here, she shares her journey from a frightening diagnosis to finding reassurance through the WMUK community. I didn’t have many symptoms; I just felt so breathless when I went... - [Rare Cancer Bills – what it means for the WM and LPL community](https://www.wmuk.org.uk/2026/03/rare-cancer-bills-what-it-means-for-the-wm-and-lpl-community/): The new Rare Cancers Act. This is an important moment for people diagnosed and living with rare cancers, including WM and LPL. - [ThankYou](https://www.wmuk.org.uk/thankyou/): [user_registration_membership_thank_you] - [Membership Pricing](https://www.wmuk.org.uk/membership-pricing/): Membership Listing - [Lost Password](https://www.wmuk.org.uk/lost-password/): [user_registration_lost_password] - [My Account](https://www.wmuk.org.uk/my-account/): [user_registration_my_account] - [Registration](https://www.wmuk.org.uk/registration/): [user_registration_form id="19289"] - [Login](https://www.wmuk.org.uk/login/): [user_registration_login] - [The National Cancer Plan: what it could mean for people with WM and LPL](https://www.wmuk.org.uk/2026/02/the-national-cancer-plan-what-it-could-mean-for-people-with-wm-and-lpl/): On Wednesday 4 February the government released the National Cancer Plan for England, which will drive cancer care. The new National Cancer Plan for England is an important opportunity to improve how people are diagnosed, treated and supported. For the first time, Government has made a clear commitment to focus specifically on rare and less... - [Understanding Your Immune System and How to Stay Well](https://www.wmuk.org.uk/2026/01/understanding-your-immune-system-and-how-to-stay-well/): Your Immune System Your immune system is your body’s own security system. It’s made up of many parts, including immune cells, antibodies, bone marrow, lymph nodes and the spleen. Each part plays an important role in detecting and fighting infections, helping to keep you well. Waldenstrom’s macroglobulinaemia (WM) or lymphoplasmacytic lymphoma (LPL) can place extra... - [Beat The Winter Blues and Combat Loneliness](https://www.wmuk.org.uk/2026/01/beat-the-winter-blues-and-combat-loneliness/): Winter can feel long, dark and never ending – often referred to as ‘winter blues’. Experts at the Mind Charity explain that there’s no scientific proof for a single day or month to cause the blues, but it’s completely normal to feel a dip after the festive period. There are lots of small things you... - [Help With Heating Costs](https://www.wmuk.org.uk/2026/01/help-with-heating-costs/): Staying warm isn’t just about home comforts – it’s an important part of keeping well with WM or LPL. If you’re worried about heating costs, you may be eligible for financial support. The following online schemes could make a huge difference by easing the pressure of rising energy costs. Simply click on the links to... - [WMUK Christmas Opening](https://www.wmuk.org.uk/2025/12/wmuk-christmas-opening-2/): Our Support Line will be closed from 5pm on Thursday 18 December 2025 and will reopen at 9am on Monday 5 January 2026.⁠ - [WM Patient Priorities Shared at Major Haematology Conference](https://www.wmuk.org.uk/2025/12/wm-patient-priorities-shared-at-major-haematology-conference/): WMUK shared patient priorities at the ASH Annual Conference, including findings from the WM-VOICE study on what matters most to people living with Waldenström’s macroglobulinaemia. - [Flu Checklist](https://www.wmuk.org.uk/2025/12/flu-checklist/): Living with WM or LPL means infections like flu can be more serious. Use this winter flu checklist to monitor symptoms, know when to contact your GP, and seek urgent help if needed. - [Instructors List](https://www.wmuk.org.uk/instructors-list/): [masteriyo_instructors_list] - [Learn](https://www.wmuk.org.uk/learn/): - [Instructor Registration](https://www.wmuk.org.uk/instructor-registration/): [masteriyo_instructor_registration] - [Checkout](https://www.wmuk.org.uk/checkout/): [masteriyo_checkout] - [Account](https://www.wmuk.org.uk/account/): [masteriyo_account] - [Courses](https://www.wmuk.org.uk/courses/): - [Register for online courses](https://www.wmuk.org.uk/health-care-professionals/e-learning/register-interest/): WMUK Online Learning Programme Registration Register your interest WMUK, alongside Guys Cancer Academy, have created the first online learning programme that aims to build your understanding of Waldenstrom’s macroglobulinaemia (WM) - from its biology and presentation to treatment, complications, and holistic support - enhancing your confidence to recognise, manage and support people living with the... - [Online Learning Programme for Healthcare Professionals](https://www.wmuk.org.uk/health-care-professionals/e-learning/): Free online learning for cancer nurses and health professionals caring for Waldenström’s macroglobulinaemia (WM), worth 20 CPD points. - [Big Give 2025 Alt Version](https://www.wmuk.org.uk/big-give-2025-alt-version/): Double your donation this week, & build the WMUK Support Centre We’re raising £70,000 to turn the WMUK Support Centre into reality. Your donation today is doubled, but only until 9 December. Give between 2–9 December and your gift will be matched, £ for £, in the Big Give Christmas Challenge. Donate Now - Every... - [WMUK to Present Active Monitoring Checklist at the House of Lords](https://www.wmuk.org.uk/2025/10/wmuk-to-present-active-monitoring-checklist-at-the-house-of-lords/): How WMUK is helping to shape the NHS National Cancer Plan for people affected by rare cancers, along with the Cancer52 alliance. - [Rachael's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/rachaels-story/): Living With Waldenstrom’s: My Journey I was diagnosed with Waldenstrom’s macroglobulinemia (WM) on the 15th of May 2023. It still feels strange to say those words. My story started a few years earlier, though, when I had Covid really badly towards the end of lockdown. I’d gone back into school to work with vulnerable students,... - [Meet Rachel: WMUK’s New Support Nurse](https://www.wmuk.org.uk/2025/10/meet-rachel-wmuks-new-support-nurse/): We’re delighted to introduce Rachel, our new WMUK Support Nurse. We caught up with her for a chat about her background, her career in haematology, and her life outside of work. Q: Where are you based?A: I’m now in Harrogate but lived in Birmingham for 12 years before this. I was working in a hospice... - [Jane’s Story](https://www.wmuk.org.uk/janes-story/): When Jane Kirk discovered a lump during a yoga class, she never imagined it would lead to a rare blood cancer diagnosis. Here, she shares her journey through uncertainty, self-advocacy, and finding reassurance with the right support. I first realised something was wrong in September 2024 while I was doing yoga. I was in a... - [WMUK Patient Summit – Birmingham, England](https://www.wmuk.org.uk/wmuk-patient-summit-birmingham-england/): WMUK Regional Patient SummitBirmingham, England Buy Tickets Download Agenda We’re hosting our WM Patient Summit in Birmingham, England this NovemberWe can’t wait to welcome you to Birmingham this November. This summit is a chance to learn together, share experiences, support one another, and shape the future of care for people living with WM.We’re still finalising... - [WMUK Patient Summit – Northern Ireland](https://www.wmuk.org.uk/wmuk-patient-summit-northern-ireland/): The event was held earlier in 2025. WMUK Regional Patient Summit Northern Ireland We’re delighted to be hosting our very first WM Patient Summit in Northern Ireland this October.As a smaller WM community here, this is a wonderful chance to come together, share experiences, support one another, and strengthen our voice.We’re excited to welcome two... - [Busting Myths About WM](https://www.wmuk.org.uk/2025/09/busting-myths-about-wm/): WMUK bust a few myths around Waldenstrom’s macroglobulinaemia. - [September is Blood Cancer Awareness Month](https://www.wmuk.org.uk/2025/09/september-is-blood-cancer-awareness-month/): Blood cancer may often be called a “hidden cancer,” but together, this September, we can raise awareness, and support one another. - [Government Launches Diagnosis Connect](https://www.wmuk.org.uk/2025/08/government-launches-diagnosis-connect/): From 2026, Diagnosis Connect will link patients with trusted charities to boost support for long-term conditions like diabetes and mental health. - [The 10 Year HealthPlan – what does it mean for the WM community?](https://www.wmuk.org.uk/2025/08/nhs-10-year-healthplan-what-does-it-mean-for-the-wm-community/): How will the NHS 10 Year Health Plan could transform care for those with Waldenstrom’s macroglobulinaemia (WM). Find out what’s changing and what WMUK is doing to ensure patient needs are met. - [PIF TICK accredited – a mark of quality](https://www.wmuk.org.uk/about-wmuk/pif-tick-accredited-a-mark-of-quality/): PIF TICK accredited The mark of quality WMUK has been awarded accreditation by PIF TICK, the recognised mark for up-to-date, expert and accessible healthcare information in the UK. This means all our accredited healthcare information has gone through a rigorous process to ensure it meets the needs of those using the information, is clinically accurate... - [Q&A with Janet – Why the WM Buddy Service really matters.](https://www.wmuk.org.uk/2025/07/qa-with-janet-why-the-wm-buddy-service-really-matters/): WM Buddy Janet shares how her own for Waldenstrom’s macroglobulinaemia diagnosis inspired her to support others through WMUK’s Buddy Service. - [Government Shares Update on 10-Year Health Plan](https://www.wmuk.org.uk/2025/07/government-shares-update-on-10-year-health-plan/): Today, the government released new details outlining the next phase of its 10-Year Health Plan. These updates build on the wide-ranging country-wide consultation that took place last year and highlight key priorities for transforming NHS care. What’s changing? The strategy outlines three major shifts in the way care will be delivered: Sickness to Prevention Hospital to community... - [A New Chapter in WM Research](https://www.wmuk.org.uk/2025/07/a-new-chapter-in-wm-research/): From 1st July 2025, the Rory Morrison Registry is closing. The next chapter puts ensures the WM community shapes the future of care, research, & support. - [HOME NEW](https://www.wmuk.org.uk/): WMUK - The only UK charity focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare of blood cancer. - [Q&A with Kevin: Why I Became a Buddy for WMUK](https://www.wmuk.org.uk/2025/05/qa-with-kevin-why-i-became-a-buddy-for-wmuk/): As part of Volunteers Week, we spoke with Kevin, one of WMUK’s volunteer buddies. He shares his journey with Waldenstrom’s macroglobulinemia (WM), his motivation for becoming a buddy, and why he believes this simple act of connection can make a profound difference. Q: Tells us about your WM journey?A: It all started back in October... - [The Big WM Survey – driving change for WM patients and families](https://www.wmuk.org.uk/2025/01/the-big-wm-survey-results/): Mental health, information and diagnosis were highlighted as areas of focus for the WM community. Last summer, over 500 patients, family members, friends and carers completed the Big WM Survey, run by WMUK. The results have shed light on key areas of support needed by people affected by Waldenstrom’s macroglobulinaemia (WM) to help them live... - [WMUK launches Winter Fuel Fund](https://www.wmuk.org.uk/2025/01/wmuk-launches-winter-fuel-fund/): If you’re struggling with heating bills this winter, WMUK is here to help As a charity, we’re here to help the WM community in whatever way you need. That’s why, this week we’re launching the WMUK Winter Fuel Fund to help anyone with a WM or LPL diagnosis who is struggling to pay heating bills... - [The festive calendar at WMUK](https://www.wmuk.org.uk/2024/12/the-festive-calendar-at-wmuk/): The festive calendar at WMUK This time of year is often one of excitement and coming together, but we also know that this isn't the case for everyone in the community. Whether you're looking for advice, or a friendly chat, here's everything you need to know about accessing our support for Waldenstrom's macroglobulinaemia and our events... - [Support the WM community as you shop this Christmas](https://www.wmuk.org.uk/2024/11/support-the-wm-community-as-you-shop-this-christmas/): Whether you're stocking up on mulled wine, buying that special present for a loved one, or treating yourself to something nice in the sales, remember that you can also be supporting the WM community as you do so. WMUK is registered to both Give As You Live and EasyFundraising - online giving platforms that donate... - [Help shape the future of WM treatment](https://www.wmuk.org.uk/2024/10/help-shape-the-future-of-wm-treatment/): The WM-VOICE study is looking for UK patients to share their views anonymously as a part of first-of-its-kind study, looking at the treatment preferences of WM patients. The study – full name WM-VOICE study: Patient preferences on treatment options for Waldenstrom macroglobulinemia: An international discrete choice experiment – is being conducted by researchers from the... - [Moving the WM community from analogue to digital](https://www.wmuk.org.uk/2024/10/moving-the-wm-community-from-analogue-to-digital/): What the government’s 10-year health strategy means for you On Monday the government announced a new 10-year strategy for the NHS in England, focussing digitisation, creating a single patient record, and moving care into the community. The NHS is consulting with the public and organisations about what changes they’d like to see in the NHS... - [Pedal Pushers Unite!](https://www.wmuk.org.uk/2024/10/pedal-pushers-unite/): Picture this: ten brave (and slightly wobbly) souls, still decked out in neon spandex and questionable helmet hair, are gearing up for an epic ride through the scenic landscapes of the Netherlands. What began as a fun idea to ride from Amsterdam to Utrecht, to Leiden, and back to Amsterdam, has turned into a full-blown... - [Trio trek for loved one](https://www.wmuk.org.uk/2024/08/trio-trek-for-loved-one/): Keely, her sister Nikki and aunt Dot have been busy training and preparing for a first ever fundraising challenge - and they're not messing about. The trio will be taking on a huge 30 mile hike along the Northumbrian coast this week. "It’s the first time we’ve tackled a fundraising challenge like this together," writes... - [Cyclists raise funds for 'special community'.](https://www.wmuk.org.uk/2024/08/cyclists-raise-funds-for-special-community/): We found WMUK and their online community an invaluable source of knowledge, support and reassurance during what was a difficult time. - [London to Paris cyclists gear up for epic challenge](https://www.wmuk.org.uk/2024/08/london-to-paris-cyclists-gear-up-for-epic-challenge/): "I'm so pleased to have an opportunity to support my husband and the wider WM community." - Catherine Ferris, London to Paris cyclist. Our team of intrepid cyclists will be soon be kicking off their epic challenge in London. Over three days, they’ll tackle hills, cities and aching legs to take them all the way... - [WMUK launches the Big WM Survey](https://www.wmuk.org.uk/2024/08/wmuk-launches-the-big-wm-survey/): We're excited to launch the Big WM Survey - a European-wide survey specifically aimed at WM patients, families, friends and carers to better understand the WM experience and identify key areas where we can improve care. What is the survey? The Big WM survey asks WM patients, families, friends and carers to share their experiences... - [Meet our Chief Nursing Officer](https://www.wmuk.org.uk/2024/07/meet-our-chief-nursing-officer/): Alison McKinney set up our Support Line, staffed it for 18 months, and is stepping into a new role at WMUK as our Chief Nursing Officer (CNO). - [WMUK speaking on Active Monitoring at the British Society of Haematology Conference](https://www.wmuk.org.uk/2024/04/wmuk-speaking-on-active-monitoring-at-the-british-society-of-haematology-conference/): On Monday WMUK will be representing the Waldenstrom Macroglobulinaemia (WM) community at the British Society of Haematology 64th Conference taking place in Liverpool form 28th to 30th April 2024. We have been invited to take part in an Industry Education Session, to be the voice of the patient community, sharing and discussing the work of... - [A Key Step to a Standard Care Pathway for WM](https://www.wmuk.org.uk/2024/04/a-key-step-to-a-standard-care-pathway-for-wm/): About the Active Monitoring Checklist Project Regular discussions on WMUK forums often talk about the vastly different experiences WMers have when on active monitoring for Waldenstrom's macroglobulinaemia and just how stressful the whole process is. In discussing the issues with the clinical advisory board, they too highlighted the issue that healthcare professionals (HCPs) have drastically... - [Louis Walsh’s Waldenstrom's Macroglobulinaemia blood cancer diagnosis](https://www.wmuk.org.uk/2024/03/louis-walshs-waldenstroms-macroglobulinaemia-blood-cancer-diagnosis/): We are really sad to hear of Louis Walsh’s diagnosis with the rare blood cancer, Waldenstrom's Macroglobulinaemia, and thank him for the courage to talk so openly about it on Big Brother. We are glad to hear that Louis sounds like he is in remission, but for many WM can be a cruel disease, with... - [Patient Summit Q&A](https://www.wmuk.org.uk/2024/03/patient-summit-qa/): Answers from the experts from your questions and concerns. There were so many important questions raised at the Patient Summit last October that not all could be answered over the course of the day. So we asked two of the expert clinicians who spoke, Dr Shirley D’Sa, from University College Hospital London (UCLH), and Professor... - [Introducing our new Chair of Trustees](https://www.wmuk.org.uk/2024/02/introducing-our-new-chair-of-trustees/): We're delighted to announce that Charles Lilley has agreed to take on the role of WMUK's new Chair of our Board of Trustees.  Many of you will already be familiar with Charles as he has been a trustee of the charity since October 2022, but he’s been key in the recent developments of the Rory... - [You smashed the Big Give!](https://www.wmuk.org.uk/2023/12/you-smashed-the-big-give/): This Christmas, the WM community has come together to raise a HUGE £63,000 (including Gift Aid). When we first launched our Christmas campaign through the Big Give - which doubles donors gifts - we hoped the community would support us. We never dreamed that we would raise almost double our original target! A massive, heartfelt... - [Your Donations DOUBLED This Christmas](https://www.wmuk.org.uk/2023/11/your-donations-doubled-this-christmas/): Here at WMUK we’re constantly striving to improve care and find new treatments for WM. This Christmas we have an opportunity to make real progress through an exciting initiative called the Big Give. What is the Big Give? The Big Give is an online giving platform, which makes it easy for people to support great... - [Watch the European WM Patient Forum](https://www.wmuk.org.uk/2023/11/watch-the-european-wm-patient-forum/): All the talks from the European WM Patient Forum in Birmingham and Amsterdam are available to watch online now - [Community and research at the forefront of WM Forum](https://www.wmuk.org.uk/2023/11/community-and-research-at-the-forefront-of-wm-forum/): The importance of the WM community and patient-focussed research were the two key takeaways from the first ever European WM Patient Forum. Battling torrential rain, cancelled trains and gale-force winds, the WM community was still able to come together in Birmingham and Amsterdam for a fantastic day of learning, sharing and positivity. For those that... - [New alliance will help drive Waldenstrom's macroglobulinaemia research](https://www.wmuk.org.uk/2023/10/new-alliance-will-help-drive-waldenstroms-macroglobulinaemia-research/): WMUK is pleased to announce a new five year strategic alliance with Dendrite Clinical Systems, to help drive forward research into Waldenstrom's macroglobulinaemia through the WMUK Rory Morrison Registry. This will provide a stable and secure basis for enabling WMUK to access specialist skills in the development, maintenance, hosting, support and reporting on multiple national... - [Wheels for Waldenstrom's team pedal for glory](https://www.wmuk.org.uk/2023/09/wheels-for-waldenstroms-team-pedal-for-glory/): For three days in August, 20 riders took on the incredible challenge of cycling from London to the heart of Paris to support the work of WMUK. Rebecca Milburn, whose mother has WM, explains how the ride raised an incredible sum of money, by uniting the team in a common purpose. Our journey together began... - [A statement to our donors](https://www.wmuk.org.uk/2023/08/a-statement-to-our-donors/): Our donors mean the world to us. Without them, we can’t fund our Support Line, produce information or drive forward research. However, we’re aware that we haven’t been as attentive as we should to these important people. We’re a very small team, balancing a growing number of projects, and sometimes we drop balls. We’re so... - [Shingles vaccine extended to cover vulnerable adults over the age of 50](https://www.wmuk.org.uk/2023/07/shingles-vaccine-extended-to-cover-vulnerable-adults-over-the-age-of-50/): People who are severely immuno-compromised and are over the age of 50 will be offered the shingles vaccine this autumn. The Joint Committee of Vaccination and Immunisation (JCVI) recommended that the the vaccines - Shingrix - be rolled out to a wider group of people after it was shown to be highly effective for people... - [Nigel Coupland is on a mission to raise vital funds for our charity](https://www.wmuk.org.uk/2023/06/nigel-coupland-is-on-a-mission-to-raise-vital-funds-for-our-charity/): After being diagnosed with Waldenstrom's macroglobulinaemia, Nigel Coupland is on a mission to raise vital funds for our charity which has helped him in his battle against the rare blood cancer. Read more about how and why he is raising money here. - [Financial help for the WM community!](https://www.wmuk.org.uk/2023/05/financial-help-for-the-wm-community/): EDIT: Due to the high response to this programme, the fund has now been closed. We thank our generous donors who made this possible, and are working hard to reopen the fund in the future. WMUK is thrilled to announce its first ever Patient Assistance Fund to help offer financial support to the WM Community.... - [Support Update](https://www.wmuk.org.uk/2023/05/support-update/): I am writing to inform you that Bob Perry, Community Support Manager, will resign from his paid role with WMUK at the end of the month. Bob has been an integral part of the development of patient support at WMUK and we would like to acknowledge his dedication and passion over the past two years.... - [Meet the… Support Line and Education Manager](https://www.wmuk.org.uk/2023/04/meet-the-support-line-and-education-manager/): As part of a new series, we’re going to be meeting people from across the WM community. Where better to start than the newest member of the WMUK team. Alison McKinney joined WMUk in August 2022 to establish the charity’s support line. Alison currently runs the support line and is also developing our Nurse Education... - [COVID-19 Spring Boosters](https://www.wmuk.org.uk/2023/04/covid-19-spring-boosters/): The Spring booster programme for 2023 has now started. There will also be a further booster in Autumn 2023. Those eligible for a Spring 2023 booster include: adults aged 75 years and over residents in a care home for older adults people aged 5 years and over who are immunosuppressed (this includes people with blood... - [We have a new Chair!](https://www.wmuk.org.uk/2023/01/we-have-a-new-chair/): WMUK is excited to announce the interim appointment of Nina Pinwill as its Chair of Trustees, following the resignation of Chair Will Franks at the end of last year. Nina has been a Trustee at WMUK for over four years and brings vast healthcare experience to the charity and is currently Head of Commercial Operations... - [WMUK Support Line goes live](https://www.wmuk.org.uk/2022/11/wmuk-support-line-goes-live/): We are so excited to announce that the WMUK Support Line has gone live today (21st November) The support line is hoped to be a dedicated line to offer support, advice and signposting to WM patients. The support line was funded entirely by your fundraising efforts from last year's Walk for Waldenstrom's, which we have... - [Great news for Scotland as SMC approves use of zanubrutinib](https://www.wmuk.org.uk/2022/11/great-news-for-scotland-as-smc-approves-use-of-zanubrutinib/): Following a resubmission to the Scottish Medicnes Consortium (SMC), zanubrutinib has now been approved for use within NHS Scotland. This a great result for the WM community in Scotland and gives patients a wider choice of treatment options. Jane Nicholson, CEO at WMUK said: "Following a disappointing decision by the SMC earlier this year, we... - [WMUK welcomes NICE Guidance for zanubrutinib in England and Wales](https://www.wmuk.org.uk/2022/09/wmuk-welcomes-nice-guidance-for-zanubrutinib-in-england-and-wales/): NICE (National Institute for Health Care and Excellence) has today published its guidance for the use of BTK (Bruton's tyrosine kinase) inhibitor, zanubrutinib, in treating people with Waldenstrom’s macroglobulinaemia (WM), a rare type of blood cancer. The announcement is good news for the WM community as it means many patients will have access to this... - [New Waldenstrom's macroglobulinaemia Guidelines published](https://www.wmuk.org.uk/2022/01/new-waldenstroms-macroglobulinaemia-guidelines-published/): The British Society for Haematology have released a new set of guidelines for the diagnosis and management of Waldenstrom's Macroglobulnaemia (WM). The Guidelines have been written with the objective of providing clear guidance to healthcare professionals when it comes to caring for people living with the disease. The first joint authors were Dr Dima El-Sharkawi... - [Privacy Policy](https://www.wmuk.org.uk/privacy-policy/): WMUK is committed to protecting your privacy & personal information, and being transparent about what information we hold. - [Sign up for the latest news about Waldenstrom's macroglobulinaemia](https://www.wmuk.org.uk/sign-up-for-the-latest-news-about-waldenstroms-macroglobulinaemia-wmuk/): Sign-up for the latest neWs Subscribe to hear about our latest news and WMUK’s work including research updates, on-line events, fundraising and other opportunities to get involved.[forminator_form id="13210"] - [Patient Advisory Group](https://www.wmuk.org.uk/about-wmuk/patient-advisory-group/): WMUK's Patient Advisory Group is the patient voice that helps to improve care and treatment for people living with WM in the UK. - [Targeted treatments](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/targeted-treatments-wmuk/): Targeted treatments are medicines that have been specially designed to seek out parts of a Waldenstrom's macroglobulinaemia cell. - [Stem cell transplants](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/stem-cell-transplants-for-wm/): Stem Cell Transplants replace damaged cells with healthy cells. An intensive treatment that is isn’t suitable for everyone with Waldenstrom's macroglobulinaemia - [Common Treatment Regimes](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/common-treatment-regimes-wmuk/): Common Treatment Regimens for WM For people with Waldenstrom's macroglobulinaemia, the most common first-line treatments are combinations of drugs. These combinations are known as 'regimens'.Regimens are usually split into cycles. You’ll have the drugs at one point in the cycle, before having a period of not taking them. Because treatment can have side effects or... - [Steroids](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/steroids/): Steroids may be used as part of a treatment regimen for Waldenstrom's macroglobulinaemia (WM). - [CAR T-cell therapy](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/car-t-cell-therapy/): CAR T-cell therapy is an intensive cancer treatment with potentially serious side effects. It my appear in trials for WM in the future. - [Related Conditions to WM](https://www.wmuk.org.uk/your-journey-with-wm/what-is-waldenstroms-macroglobulinaemia/related-conditions-to-wm/): Your symptoms might indicate a condition related to Waldenstrom's macroglobulinaemia. Your doctor should investigate any symptoms you report. - [What is MGUS?](https://www.wmuk.org.uk/your-journey-with-wm/what-is-waldenstroms-macroglobulinaemia/related-conditions-to-wm/mgus-wmuk/): What is MGUS? Find out about Monoclonal gammopathy of undetermined significance, a blood condition that affects cells in your bone marrow. - [What is Lymphoplasmacytic lymphoma (LPL)?](https://www.wmuk.org.uk/your-journey-with-wm/what-is-waldenstroms-macroglobulinaemia/what-is-lymphoplasmacytic-lymphoma-lpl/): Lymphoplasmacytic lymphoma (LPL) is a type of blood cancer when B-Cells (a type of white blood cell) develop incorrectly. - [Research & Data](https://www.wmuk.org.uk/research-data/): WMUK supports research in Waldenstrom's macroglobulinaemia, including collecting anonymised patient data. Find out how to support WM research. - [Donate to WMUK](https://www.wmuk.org.uk/donate-to-waldenstroms-macroglobulinaemia-wmuk/): Please help WMUK continue supporting people with WM, and providing much needed information & resources to healthcare professionals. - [Vacancies](https://www.wmuk.org.uk/vacancies/): Vacancies at WMUK Please see below the current vacancies at WMUK: Information and Data Administrator Location: Remote, UK-based, with occasional travel for meetingsHours: 2 days per weekSalary: £27,000-£30,000 FTE, pro rataReporting to: Deputy CEOContract: Permanent Closing date: 5pm 1 June 2026 About the role WMUK is looking for an organised and self-driven administrator. With a... - [About clinical trials for Waldenstrom's macroglobulinaemia](https://www.wmuk.org.uk/wm-clinical-trials-hub/clinical-trials-for-wm/): We explain what clinical trials are, how they help improve care & treatment for people living with Waldenstrom's macroglobulinaemia, & how you can get involved. - [WM Clinical Trials Hub](https://www.wmuk.org.uk/wm-clinical-trials-hub/): Find clinical trials for Waldenstrom's macroglobulinemia in the UK, & advice about taking part in WM clinical trials that are currently recruiting. - [WMUK Winter Fuel Fund](https://www.wmuk.org.uk/patient-financial-assistance-fund/): WMUK Winter Fuel Fund If you’re struggling with heating bills this winter, WMUK is here to help.We’ve launched the Winter Fuel Fund, to help those of you unable to meet heating bills and ensure you can keep living well with WM Apply now One of our governing objects is to provide financial support to help... - [Active Monitoring Checklist](https://www.wmuk.org.uk/your-journey-with-wm/active-monitoring-wmuk/active-monitoring-checklist/): The WMUK Active Monitoring Checklist We want to help you get the most of our your clinical appointments. We’ve put together ‘checklist’  to guide your conversations with your healthcare team. This will help you feel more prepared and confident to ask the right questions about the things that matter to you. Ultimately, we hope this... - [When should I contact my healthcare team?](https://www.wmuk.org.uk/your-journey-with-wm/active-monitoring-wmuk/when-should-i-contact-my-healthcare-team/): When should I contact my healthcare teaM? You don’t need to wait between appointments to speak to your healthcare professional team.  If you have new symptoms or your symptoms are getting worse, don’t hesitate to contact your healthcare team. This could be a sign that your Waldenstrom's macroglobulinaemia needs treatment, and your doctor might want... - [Coping With anxiety](https://www.wmuk.org.uk/your-journey-with-wm/active-monitoring-wmuk/coping-with-anxiety/): Coping With anxiety It’s completely normal to feel anxious when you're on active monitoring. You might feel uneasy about not starting treatment right away, or worry about what the future holds. You're not alone — many people feel the same. The good news is, there are lots of simple, supportive ways to help ease that... - [Exercise with WM](https://www.wmuk.org.uk/your-journey-with-wm/living-well-with-waldenstroms-macroglobulinaemia/exercise-with-wm-2/): Waldenstrom’s macroglobulinaemia may affect your ability to exercise, but it’s important to keep as active as you can. Read our tips for exercising with WM. - [Big Give 2024](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/big-give-2024/): Time is running out to double your donations for free Days Hours Minutes Seconds The Big Give Christmas Challenge has ended for this year. You can still donate or help us raise funds in other ways Donate Now Double the Difference for WM Patients Today When you donate through the Big Give Christmas Challenge, your... - [Wheels for Waldenstrom’s](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/wheels-walks-and-challenges/wheels-for-waldenstroms/): Wheels for Waldenstroms Wheels for Waldenstrom’s is our annual cycling challenge. Every year a team of inspirational people come together for a multi-day cycling challenge, raising tens of thousands of pounds to help people with WM live longer, better quality lives. Sign up to take on the 2025 London to Paris Tour de France Cycle... - [Walk for Waldenstrom’s](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/walk-for-waldenstroms/): Walk for Waldenstrom’s Get active and help us raise £15,000 so our expert nurses can continue to provide a lifeline of support. Register Now What’s it all about? Walk for Waldenstrom’s this Spring and every penny you raise can help fund the world’s only nurse-led Support Line. Together, we can ensure our expert nurses can... - [Wheels, Walks and Challenges](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/wheels-walks-and-challenges/): Calling all those who like to get active! We have a whole swathe of activities that will get your blood pumping, some more vigorously than others. - [Do your Own Thing](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/do-your-own-thing/): Do your own thing Organising your own fundraiser doesn’t have to be complicated. We're here to help From coffee morning to pub quizzes, we’re here to help you get involved and raise funds for the WM community. Here are some ideas and tips to help you get started, but of course we’re here to help... - [Fundraise](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/): Fundraise for WM Fundraising for WM through sponsored events, quizzes and local activities help us maintain and continue improving our services to benefit the whole WM community. Wheels, Walks & Challenges Calling all those who like to get active! We have a whole swathe of activities that will get your blood pumping, some more vigorously than... - [All People](https://www.wmuk.org.uk/all-people/): All People - [Donate](https://www.wmuk.org.uk/help-us-to-help-you/donate/): Ways to Donate Your donations will change lives of those with WM both now and in the future.  There are lots of ways you can make a donation. Single or Monthly In your will In memory Other ways to give Single or Monthly Regular donations help us plan ahead and work more effectively. Every penny... - [WMUK Team](https://www.wmuk.org.uk/about-wmuk/wmuk-team/): WMUK has a small core team of highly-skilled & experienced people. - [Help us to help you](https://www.wmuk.org.uk/help-us-to-help-you/): WMUK is built on the generosity of supporters like you. Our supporters fund 100% of all our work. Help us to help you. Find out what can we provide. - [Patient Record Form](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-record-form/): As the only charity for people like you, affected by Waldenstrom’s macroglobulinaemia (WM), we want to make sure we’re providing you with the most relevant information and news. To help us do this, we’d appreciate you sharing the below details with us. We’ll use them to make sure you get information about treatments, ways to... - [WMUK Regional Patient Summits 2025](https://www.wmuk.org.uk/giving-you-support-for-wm/wmuk-regional-patient-summits-2025/): WMUK Regional Patient Summits Bringing personalised support and expert information to your region in 2025 Book Wales Scotland Info Four different summits for four different regions. At WMUK, we know that WM experiences differ depending on where you’re living, and that’s why this year we’re taking our Patient Summit to each country in the UK.... - [Regional Patient Summit Fund 2025](https://www.wmuk.org.uk/giving-you-support-for-wm/wmuk-regional-patient-summits-2025/regional-patient-summit-fund-2025/): Regional Patient Summit Fund We know that travel costs can be an obstacle to attending important face-to-face events like our Summits. If you’re wanting to attend but can’t because of the cost of travel or an overnight stay, we’re here to help. Our Regional Patient Summit Fund offers a one-off £75 grant to people who... - [Regional Patient Summit for Scotland](https://www.wmuk.org.uk/giving-you-support-for-wm/wmuk-regional-patient-summits-2025/scotland-summit/): Regional Patient Summit – Scotland This event took place in April 2025 Bringing personalised support and expertise to Scotland We’re excited to be hosting the very first WM Patient Summit in Scotland this April. Join us for a day formed by you.Following feedback from people with WM in Scotland, we’ve made this Summit all about... - [Regional Patient Summit for Wales](https://www.wmuk.org.uk/giving-you-support-for-wm/wmuk-regional-patient-summits-2025/wales-summit/): Regional Patient Summit – Wales Bringing personalised support and expertise to Wales Buy Tickets We’re excited to be hosting the very first WM Patient Summit in Wales this May. Join us for a day formed by you.Following feedback from people with WM in Wales, we’ve made this Summit all about bringing Welsh expertise to you,... - [MyWM](https://www.wmuk.org.uk/mywm/): Register for our new MyWM app. Manage & enable discussions with your healthcare team, & provide data to improve understanding of Waldenstrom's macroglobulinemia. - [Join the WM Cancer Buddy Service](https://www.wmuk.org.uk/giving-you-support-for-wm/wmuk-buddy-service/): WMUK Buddy service gives people with WM access to a cancer buddy - someone who has been through what you're going through, & can provide peer-to-peer support. - [WMUK Support Line](https://www.wmuk.org.uk/giving-you-support-for-wm/wmuk-support-line/): Our blood cancer nurses are here to answer questions about Waldenstrom’s macroglobulinaemia, offer practical advice, & provide emotional support - [Diet & WM](https://www.wmuk.org.uk/your-journey-with-wm/living-well-with-waldenstroms-macroglobulinaemia/diet-wm/): Diet & Exercise with WM Having a good diet can help to boost your energy, strengthen immunity, and support your overall health. Staying active, will also help to reduce fatigue, improve mental health, control weight and blood pressure, and even manage treatment side effects.You may find your weight changes if you are on treatment or... - [WM Healthcare Team](https://www.wmuk.org.uk/your-journey-with-wm/after-diagnosis/wm-healthcare-team-2/): Your WM healthcare team When you are diagnosed with Waldenstrom's macroglobulinaemia, you have a whole team of healthcare professionals who work together to plan your care. These healthcare professionals specialise in different areas of your care, and together they are called a multidisciplinary team (MDT). You might have already met some of these people whilst... - [WMUK Board](https://www.wmuk.org.uk/about-wmuk/wmuk-board/): WMUK's board of trustees are elected, and responsible for the governance and strategic direction of the charity. - [Ellie's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/ellies-story-wmuk/): Ellie was a keen runner, fit and well, who initially put her symptoms down to a bug. It turned out to be Waldenstrom’s macroglobulinaemia. - [Keith's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/keiths-story-wmuk/): At 67 years old, I thought it was more a symptom of not being as young and energetic as I once was, but I went to the doctors, just to be sure. They called me back only four hours after my blood test. Did I get headaches? Was there tingling in my toes and fingers?... - [Peter's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/peters-story-wmuk/): A routine blood test led to a surprise for Peter. Read Peter's story of how he learned to live with Waldenstrom's macroglobulinaemia - [Rebecca's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/rebeccas-story-wmuk/): Rebecca's story of how she handled Waldenstrom’s macroglobulinaemia as a care home worker, while struggling with vaccinations. - [Richard's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/richards-story-wmuk/): Richard's journey with Waldenstrom's macroglobulinaemia began when the optician noticed something abnormal with the blood vessels in his eyes. - [Treatment Centres](https://www.wmuk.org.uk/your-journey-with-wm/after-diagnosis/treatment-centres/): WM Treatment centres Waldenstrom's macroglobulinaemia is rare type of cancer and should be treated by healthcare professionals who have expert knowledge and experience of caring for people with the disease. While there aren’t any specialist centres treating Waldenstrom's macroglobulinaemia in the UK, there are a handful of WM expert clinicians.Many WMers are treated in local... - [Wheels for Waldenstroms 2024](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/wheels-for-waldenstroms-2024/): Wheels for Waldenstroms 24-26 August 2024 Following the success of the 2023 team, Wheels for Waldenstroms will be back in 2024.Raising money and awareness for WMUK, the challenge starts from London and then through the English and French countryside before arriving in Paris. It is suitable for cyclists of all abilities.You will be looked after... - [Rob's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/robs-story-wmuk/): Rob's journey with WM began when he was up a mountain & suddenly felt breathless with the strength drained out of his legs. - [Blood Tests](https://www.wmuk.org.uk/your-journey-with-wm/after-diagnosis/blood-tests/): Blood Tests & WM When you’re diagnosed with WM, you’ll have regular blood tests to monitor your ongoing health. Doctors are looking for changes in things like the thickness of your blood, the number of blood cells and protein levels, which could indicate changes in your WM. What is a blood test? A blood test... - [Rory's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/rorys-story-wmuk/): Rory Morrison was diagnosed with Waldenstrom’s macroglobulinaemia, aged just 39. Read his story here. - [WMUK Library](https://www.wmuk.org.uk/wmuk-library/): The WMUK Library is a vital resource, packed with news, webinars, links and information about Waldenstrom's macroglobulinaemia. - [Vern's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/verns-story-wmuk/): Vern's journey with Waldenstrom's macroglobulinaemia took a long time to get going, because he brushed-off the symptoms as signs of his age. - [Understanding WM](https://www.wmuk.org.uk/your-journey-with-wm/what-is-waldenstroms-macroglobulinaemia/understanding-wm/): Understanding WM Waldenstrom’s macroglobulinaemia (WM) is a rare, slow-growing blood cancer, classified as a type of lymphoplasmacytic lymphoma (LPL). It develops when B-cells—a type of white blood cell—develop abnormally and multiply uncontrollably. These faulty cells crowd out healthy blood cells, preventing them from working properly. B-cells and Their Role B-cells are part of the immune... - [Vicky's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/vickys-story-wmuk/): “I saw my sister go through chemotherapy, and the prospect scared me,” she explains. “Having supported my sister and being a carer to my two elderly parents, I have always been able to advocate for my own care. But when I got the call about my blood tests and my scan, I lost all my... - [Bob's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/bobs-story-wmuk/): Vern realised there was something wrong when he struggled on a favourite trek in Wales. It was Waldenstrom's macroglobulinaemia. - [Lucy's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/lucys-story-wmuk/): I was familiar with haematology departments – my father died from myeloma. His experience stuck with me as I underwent a series of tests, and despite the best effort of the consultant and his team, I was scared. ​That fear didn’t go away once I was diagnosed with Waldenstrom’s macroglobulinaemia in June 2018. My initial... - [Events](https://www.wmuk.org.uk/giving-you-support-for-wm/events/): WM Events Explore online and in person events to support everyone impacted by WM.We regularly run expert-led webinars, Coffee and Chat sessions and in person events, including our Patient Summits, for anyone impacted by WM. Take a look to see what’s coming up.You can also catchup with recordings of our webinars online. And, of you... - [Mary's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/marys-story-wmuk/): The story of how Mary's diagnosis of Waldenstrom's Macroglobulinaemia began with a visit to A&E, and how she learned to live with WM. - [Karen's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/karens-story/): Karen put her fatigue down to her second Covid vaccination but an astute GP ordered further tests. - [Andy's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/andys-story/): In September 2022 I cycled the length of France, from Roscoff on the North Brittany coast, to Hendaye on the border with Spain. But by January 2023 I couldn’t cycle more than 2 miles! When I was training for my 2022 French ride, I had noticed some extreme fatigue and light-headedness on occasion, but had... - [European WM Patient Forum 2023](https://www.wmuk.org.uk/giving-you-support-for-wm/european-wm-patient-forum-2023/): European WM Patient Forum 2023 Experts, patients and families, and healthcare professionals met at the first ever European Patient Forum, on Waldenstrom's macroglobulinaemia, co-hosted by the IWMF and WMUK. 2023 EWMPF Videos 2024 European WM Patient Forum FInd out about the next European WM Patient Forum on 21 September 2024 at the Plaisterers’ Hall, London.... - [Komal's Story](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/komals-wm-story/): I was diagnosed with Waldenstrom’s macroglobulinaemia, at the age of 31. Lymphoma was in my bone marrow, I had multiple large lymph nodes, & an enlarged spleen. - [National & Regional Support Groups](https://www.wmuk.org.uk/giving-you-support-for-wm/national-support-groups/): Find your nearest WM support group. Meet in person & virtually with support groups across the UK for people affected by Waldenstrom's macroglobulinaemia. - [Site Map](https://www.wmuk.org.uk/site-map/): Links to all the main pages about Waldenstrom’s macroglobulinaemia on the WMUK website, to help you access information, support, documents, webinars & more. - [Working with WM](https://www.wmuk.org.uk/your-journey-with-wm/living-well-with-waldenstroms-macroglobulinaemia/working-with-wm/): Working with WM Living with Waldenstrom’s macroglobulinaemia (WM) can affect your working life in different ways — and that’s completely okay. Everyone’s experience is unique, depending on your symptoms, treatment, and the kind of work you do.Even if you’re feeling well and working as usual, it’s still helpful to know about the support and rights... - [Contact WM Support Groups](https://www.wmuk.org.uk/giving-you-support-for-wm/contact-wm-support-groups/): Contact WM Support Groups: [forminator_form id="9590"] - [Around the web](https://www.wmuk.org.uk/wmuk-library/around-the-web/): The latest news, articles and information about the rare blood cancer, Waldenstrom's macroglobulinaemia, from around the web. - [Vaccinations & WM](https://www.wmuk.org.uk/your-journey-with-wm/living-well-with-waldenstroms-macroglobulinaemia/vaccinations-wm/): Vaccinations & WM If you’re living with Waldenström’s macroglobulinaemia (WM), your immune system might not work as well as it should — which means you could be more at risk from viruses and infections like the flu.The good news is, there are simple things you can do to help protect yourself and stay well. Washing... - [When WM treatment comes to an end](https://www.wmuk.org.uk/your-journey-with-wm/when-treatment-comes-to-an-end-wmuk/): What happens when you run out of treatment options for Waldenstrom's macroglobulinaemia. - [European WM Patient Forum 2024](https://www.wmuk.org.uk/giving-you-support-for-wm/european-wm-patient-forum-2024/): The European Waldenstrom's macroglobulinaemia Patient Forum in London, 21 September 2024. Expert information, patient stories, and community. - [What is WM?](https://www.wmuk.org.uk/your-journey-with-wm/what-is-waldenstroms-macroglobulinaemia/): What is Waldenstrom's Macroglobulinaemia? WM is a rare blood cancer that can't be cured, but can be treated. Find out all about WM here. - [Symptoms of WM](https://www.wmuk.org.uk/your-journey-with-wm/what-is-waldenstroms-macroglobulinaemia/symptoms-of-wm-2/): Waldenstrom's macroglobulinaemia symptoms vary from person to person. Here we describe some of the most common symptoms of WM. - [Active Monitoring](https://www.wmuk.org.uk/your-journey-with-wm/active-monitoring-wmuk/): What is Active monitoring for Waldenstrom's macroglobulinaemia. Find out more about active monitoring & why it is may have been recommended. - [About WMUK](https://www.wmuk.org.uk/about-wmuk/): WMUK is the only charity in the UK focused on Waldenstrom’s macroglobulinaemia (WM) & LPL. We are guided by a medical experts, and powered by a dedicated team. - [Talking to someone about their diagnosis](https://www.wmuk.org.uk/friends-family-carers-wmuk/talking-to-someone-about-their-diagnosis/): Talking to someone about their WM diagnosis When someone you know is diagnosed with WM, it can difficult to know what to say. It is very common for family members or friends to struggle with this, no matter how close they are to the person diagnosed. How to talk to someone about their diagnosis, care... - [How is WM diagnosed?​](https://www.wmuk.org.uk/your-journey-with-wm/how-is-wm-diagnosed/): How is WM diagnosed? Three main tests are used to diagnose and monitor Waldenstrom’s macroglobulinaemia: blood tests, a bone marrow biopsy, CT and PET scans. Diagnosis for WM You may be referred for these tests if your GP is concerned about your symptoms.However, around a quarter of people with WM are diagnosed ‘by chance’ after routine blood tests... - [Living well with WM](https://www.wmuk.org.uk/your-journey-with-wm/living-well-with-waldenstroms-macroglobulinaemia/): Living well with WM Here, you’ll find practical advice to help you stay healthy while living with WM. There’s information on diet, exercise, mental health, juggling work and WM, and what you need to know about vaccinations. As always, if you’ve got specific questions, you can always reach out to our Support Line on 0300... - [When Waldenstrom's macroglobulinaemia transforms](https://www.wmuk.org.uk/your-journey-with-wm/what-is-waldenstroms-macroglobulinaemia/when-waldenstroms-macroglobulinaemia-transforms/): In rare cases, Waldenstrom's macroglobulinaemia can transform into a faster-growing form of lymphoma. While rare, it is prudent to be aware of the symptoms. - [When WM comes back](https://www.wmuk.org.uk/your-journey-with-wm/when-waldenstroms-macroglobulinaemia-comes-back/): Whilst treatments can lessen or eliminate the symptoms of Waldenstrom's macroglobulinaemia, it sometimes comes back. This is called a relapse. - [Newly Diagnosed with WM](https://www.wmuk.org.uk/your-journey-with-wm/newly-diagnosed-with-waldenstrom-macroglobulinaemia/): If you’ve been diagnosed, or your clinician has mentioned Waldenstrom's macroglobulinaemia, this information is for you. - [Treating WM](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/): Waldenstrom's macroglobulinaemia responds well to treatment. It will vary according to circumstances. Discover the range of treatments for WM. - [Preparing for treatment](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/preparing-for-treatment/): Prehabilitation prepares you physically & mentally for treatment for Waldenstrom's macroglobulinaemia. You may want to consider extra support. - [Response to treatment](https://www.wmuk.org.uk/your-journey-with-wm/wm-treatment/response-to-treatment-wmuk/): Individuals respond to treatment for Waldenstrom’s macroglobulinaemia differently, & there's many ways to measure a person's response to treatment. - [Health Care Professionals](https://www.wmuk.org.uk/health-care-professionals/): Information, research, data, guidance & assistance for Healthcare Professionals working with Waldenstrom's macroglobulinaemia patients. - [Healthcare Document Library](https://www.wmuk.org.uk/healthcare-document-library/): Healthcare Document Library Find the latest information on Waldenström Macroglobulinaemia diagnosis and management. - [Webinars](https://www.wmuk.org.uk/wmuk-library/webinars/): Settle down & watch WMUK's webinars with leading specialists in Waldenstrom's macroglobulinaemia mental health, cardiology, research & more... - [Mental health and WM](https://www.wmuk.org.uk/your-journey-with-wm/living-well-with-waldenstroms-macroglobulinaemia/library-mental-health/): Many people with Waldenstrom's macroglobulinaemia struggle with mental health. This is perfectly normal. Find resources & information to help. - [Patient Document Library](https://www.wmuk.org.uk/wmuk-library/patient-document-library/): The WMUK Patient Document Library is a collection of reports, resources, articles and information about Waldenstrom's macroglobulinaemia. - [WMUK Healthcare Library](https://www.wmuk.org.uk/wmuk-heathcare-professional-library/): WMUK Healthcare Library Welcome to our world-class library of WM-specific resources, where you’ll find a comprehensive range of information on Waldenstrom’s macroglobulinaemia, including the latest news, research, webinars, resources and more from across the web. Webinars for Healthcare Professionals Around the Web for Healthcare Professionals - [Giving you support for Waldenstrom's macroglobulinaemia](https://www.wmuk.org.uk/giving-you-support-for-wm/): WMUK want to support you on your WM journey. Whatever support you need for Waldenstrom's macroglobulinaemia, we’ve got something for you. - [Providing support for someone with WM](https://www.wmuk.org.uk/friends-family-carers-wmuk/supporting-someone-with-waldenstroms-macroglobulinaemia/): Providing support for someone with WM It can be a huge shock when someone you know is diagnosed with WM, and you might be unsure about what you can do to help. What can you do to support someone with Waldenstrom's macroglobulinaemia? There is no ‘right’ way to support someone, and everyone’s needs will be... - [Covid19 & WM](https://www.wmuk.org.uk/giving-you-support-for-wm/covid19/): Useful information & guidance for people with the blood cancer Waldenstrom's macroglobulinaemia who have tested positive for Covid-19. - [Friends, family & carers](https://www.wmuk.org.uk/friends-family-carers-wmuk/): Supporting someone with WM isn’t easy. Here you can find useful information on how to provide support whilst looking after yourself emotionally and practically. - [Support for carers](https://www.wmuk.org.uk/friends-family-carers-wmuk/support-for-carers/): Caring for someone with WM can be a big responsibility. Carers can find helpful resources to help you manage practically as well as looking after yourself here. - [Your Journey with Waldenstrom's macroglobulinaemia](https://www.wmuk.org.uk/your-journey-with-wm/): Your journey with WM Whether you’ve just been diagnosed, have been on active monitoring for a while or have just been told you need some treatment, we’re here to help. Your journey with Waldenstrom's macroglobulinaemia will be entirely personal to you, but we’ve tried to make this section as easy to navigate as possible so... - [Patient Stories](https://www.wmuk.org.uk/giving-you-support-for-wm/patient-stories-wmuk/): You're not alone. Discover real people telling their own patient stories of living with Waldenstrom’s macroglobulinaemia diagnosis in the UK. - [Fundraising Challenges](https://www.wmuk.org.uk/help-us-to-help-you/fundraise/fundraising-challenges/): From the Edinburgh Half Marathon, to an inflatable 5k and bungee jumps – we’ve secured places in a whole range of organised challenges. The choice is yours. Just sign up, and we’ll help you put together your Just Giving page!  See our latest events and challenges [display_challenges] - [After Diagnosis](https://www.wmuk.org.uk/your-journey-with-wm/after-diagnosis/): Receiving a Waldenstrom's macroglobulinaemia diagnosis can be overwhelming. What happens after a WM diagnosis, and the factors that impact it. - [News](https://www.wmuk.org.uk/news/): News, updates & information about what's happening in the world of Waldenstrom’s macroglobulinaemia. - [WMUK](https://www.wmuk.org.uk/sample-page/): WMUK - The only UK charity focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare of blood cancer.