11-Oct-2018
Department of Health, Northern Ireland issued a press release outlining plans for 'Improved Access to New Drugs' to cancer patients in Northern Ireland and announced plans to introduce changes to ensure that all patients have the same access to cancer drugs and treatment options as the rest of the UK.
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28-Sep-2017
Ibrutinib, the BTK inhibitor marketed by Janssen has been approved (subject to a 15 day appeal period) for Waldenstrom patients by NICE to enter the Cancer Drugs Fund to treat relapsed patients and those not suitable for chemo-immunotherapy. Read our 28th September press release below! The roll out of the Rory Morrison Registry Project can now take place nationwide, and your support will be vital to expand the number of data collection hospital centres.
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14-Sep-2017
8 WMUK volunteers- with our Patron Charlotte Green leading the event- volunteered to be part of the MBCV in September at Paternoster Square, next to St.Paul's Cathedral. This consisted of 104 installations representing the first names and heights of the number of people diagnosed each day with blood cancer, created by artist Paul Cocksedge. Each installation had the patient's story. Watch the video! Pictures below!
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07-Jul-2017
Seb's inspirational talk about being diagnosed is compulsive viewing for the younger diagnosed patient.
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01-May-2017
WMUK's popular guide to WM, authored by WMUK Trustee Dr Shirley D'Sa of UCLH has been updated and can be viewed/downloaded as a PDF.
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19-Feb-2017
WMUK, a member of the Specialised Healthcare Alliance, has signed a letter to Theresa May calling for fair treatment for patients with rare and complex conditions. The Observer and Guardian carried the story on Sunday 19th February.
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04-Dec-2016
NHS England announced today that stem cell transplants in WM would be funded, ending months of speculation when the proposed policy was held back in August pending the court decision on PrEP. Thanks go to all our community, supporters and members of fellow blood cancer charities in raising the issues of proper treatment for this disease, particularly in signing a 12,000+ strong petition in Parliament.
Particular thanks to Harriet (pictured) and Sandra who stood up and were counted,driving the campaign. Both have now had their transplants and are back home recovering.
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25-Nov-2016
NICE has announced that Ibrutinib (Imbruvica® ) is to be approved for use in relapsed Chronic Lymphocytic Leukaemia. This removes it from the Cancer Drugs fund into routine commissioning. Ibrutinib in relapsed WM and Mantle Cell Leukaemia both await NICE decisions. In relapsed WM (and those not suitable for conventional chemo-immunotherapy), Janssen have applied to put the drug into the new Cancer Drugs Fund.
You can download the Janssen press release which mentions WM.
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03-Oct-2018
JOURNEY OF THE MBCV 2018 ROADSHOW
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19-Jul-2017
8 Year 4 pupils at Holy Cross Primary Academy, Hucknall, took on a cake baking challenge for their fete to raise money for Waldenstrom Research, as they were so concerned when one of their relatives was diagnosed with WM
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30-Dec-2015
The Peire family aided by their friends at High5 Events raised a fantastic £7,000 in their village hall quiz at Barton-Le-Clay, Bedfordshire
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04-Nov-2015
WMUK joined the Blood Cancers Alliance to fight for better treatment for blood cancer patients. Read the Alliance open letter to Rt. Hon. Jeremy Hunt MP, Secretary of State for Health- then sign the petition and tell your friends!
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01-May-2015
Rory's BBC Radio colleagues Susan Calman, Jeremy Hardy Isy Suttie, Elis James,Andy Hamilton and John Finnemore raised over £8,000 for the Rory Morrison Cinical Registry at RADA
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03-Aug-2014
Rosie Durham ran in the Womens' Running 10k race in Bristol on 2nd August and has raised over £4000 to date for the Rory Morrison Clinical Registry. See the WMUK page at https://www.justgiving.com/wmuk for more ideas about sponsored events.
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15-Mar-2014
Download or read the new newsletter
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25-Mar-2014
This new guide is written for WMUK by Dr Shirley D'Sa of University College Hospital London
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12-Oct-2018
Rupinder has become part of the WM family in the capacity of an Administrator to deal with day-to-day tasks of the charity and to support the Trustees in their work.
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11-Oct-2018
WMUK continues to grow with our newest addition, Sandra Ingram as our Patient Trustee and Treasurer
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12-Oct-2018
Eric Low, former Chief Executuve and founder of Myeloma UK, has joined WMUK Board of Trustees. Eric brings with him invaluable knowledge and experience to carry forward the vision of WMUK.
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