WMUK joins in letter to PM on healthcare rationing

WMUK joins in letter to PM on healthcare rationing


WMUK, a member of the Specialised Healthcare Alliance, has signed a letter to Theresa May calling for fair treatment for patients with rare and complex conditions. The Observer and Guardian carried the story on Sunday 19th February.

The Text of the Guardian article, with a government response is here:

And the letter with Signatories:

Dear Prime Minister
Like many others with an interest in the NHS, our charities – and the patients
we represent – are deeply concerned by the recent statements of Simon
Stevens concerning the NHS’s relative underfunding. We urge you to ensure
that this year’s budget provides the NHS with the funding it needs to deliver
the standards of care patients expect.
We are also concerned about the implications of the NHS’s current financial
pressures. NHS England is now choosing to restrict and ration treatments that
patients with rare and complex conditions need – often without proper
consultation with patients. We hope that you will take action to ensure full
patient involvement in these decisions, and to ensure that any decision to
ration treatment is overseen by democratically-elected politicians.
Yours sincerely

Signatories of the SHCA
  • Alström Syndrome UK
  • Anaphylaxis Campaign
  • Anthony Nolan
  • British Kidney Patient Association
  • Children's Heart Federation: Anne Keatley-Clarke, Chief Executive
  • Chronic Granulomatous Disorder Society: Dr Susan Walsh
  • Chronic Myeloid Leukaemia
  • Cleft Lip and Palate Association (CLAPA): Dr David Stokes, Chief Executive Officer
  • CLIC Sargent
  • Communication Matters: on behalf of the Co-Chairs and Board of Trustee
  • Genetic Disorders UK: Dr Susan Walsh
  • GIST Support UK: Jayne Bressington, Vice Chair 
  • Guillain-Barré & Associated Inflammatory Neuropathies (GAIN)
  • HAEUK: Laura Szutowicz, CEO
  • Motor Neurone Disease Association
  • MS Trust: Pam Macfarlane, CEO
  • Multiple System Atrophy Trust: Andy Barrick, Deputy CEO
  • National AIDS Trust: Deborah Gold, Chief Executive
  • National Rheumatoid Arthritis Society: Ailsa Bosworth MBE, CEO and Founder
  • Niemann-Pick UK: Toni A Mathieson, Chief Executive
  • Postural Tachycardia Syndrome UK (PoTS UK)
  • Primary Immunodeficiency UK: Dr Susan Walsh, Director
  • SignHealth: Paul Stemman, Head of Policy & Communications
  • Spinal Injuries Association
  • Teenage Cancer Trust
  • The Haemophilia Society: Jeff Courtney, Policy and Public Affairs Manager
  • Tuberous Sclerosis Association: Jayne Spink, Chief Executive
  • Turner Sydrome Support Society: Arlene Smyth, Executive Officer
  • UK Thalassaemia Society
  • United Kingdom Acquired Brain Injury Forum
  • Waldenström's Macroglobulinemia UK (WMUK): Roger Brown, Chair
  • WellChild: Colin Dyer, CEO