Rare Cancer Bills – what it means for the WM and LPL community
The Rare Cancers Act is an important moment for people diagnosed and living with rare cancers, including WM and LPL.
Support Line: 0300 373 8500
Waldenstrom’s macroglobulinaemia (WM) and other types of lymphoplasmacytic lymphomas (LPL) are rare types of blood cancer. We’re here to give everyone affected by WM and LPL the knowledge and support they need to live longer, better quality lives.
We help people with Waldenstrom’s macroglobulinaemia (WM), a rare form of blood cancer live longer, better-quality lives.
We do this by providing essential resources for patients, families and healthcare professionals. Whether you need to speak to an expert, want to learn more about the condition, or are a health care professional who wants to support a patient more effectively, we can help.
Lymphoplasmacytic Lymphoma (LPL) is a rare, slow-growing blood cancer. Waldenstrom’s macroglobulinaemia (WM) is the most common type of LPL. WM and non-WM LPL belong to a group of cancers known as ‘Non-Hodgkin lymphomas’. There is no cure for WM or LPL at the moment, but there are many effective treatments.
We’re here to help with WM and LPL live longer, better lives – with WMUK supporting them every step of the way
Want to understand more about WM and LPL and what to expect at each stage of your journey? With the help of our community of experts and patients, we’ve created a range of resources to guide you along the way.
We’re ready to help you live well with WM & LPL – whether you’re looking to join a Support Group, learn how to manage your symptoms, or get one-to-one advice through our Support Line.
Take a look around and explore all the extra information and support we offer. From details on the latest clinical trial to guidance for friends and family, you’ll find what you need right here.
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Our small staff team include LPL & WM specialist nurses who work closely with our clinical advisory committee which includes experts in haematology, data science and oncology. We also consult closely with our patient advisory group to ensure the needs of patients are at the heart of everything we do.
The WMUK Board is responsible for the direction and governance of the organisation. Board members include experienced leaders and specialists who bring diverse expertise to steer WMUK towards achieving its mission.
The Patient Advisory Group (PAG) comprises 20 volunteers with direct experience of WM & LPL. Members review patient information, give feedback on new resources, and contribute to new programmes and long-term strategies.
WMUK’s core team manages the day-to-day running of the charity and its activities. The team develops resources, connects with healthcare professionals, produces information, and provides direct support to WM & LPL patients and their families.
The Rare Cancers Act is an important moment for people diagnosed and living with rare cancers, including WM and LPL.
The National Cancer Plan for England promises to spotlight rare cancers like WM and LPL, targeting earlier diagnosis, fairer access
A guide to understanding your immune system with WM or LPL, including vaccinations, infection advice and simple ways to stay
Join Sue in this yoga and relaxation session helping to support you post Christmas and prepare for the new year ahead.
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Join WMUK’s CEO, Jane Nicholson and Chair of Trustees, Harriet Scorer for an update on what the charity have been working on, our future plans, and an opportunity to ask any questions you may have.
Drop in for 5 minutes or stay for the hour we are here to chat, ask questions or just listen. You will find support from people who understand.
Drop in for 5 minutes or stay for the hour we are here to chat, ask questions or just listen. You will find support from people who understand.
Join Drop in for 5 minutes or stay for the hour we are here to chat, ask questions or just listen. You will find support from people who understand.
Join here Drop in for 5 minutes or stay for the hour we are here to chat, ask questions or just listen. You will find support from people who understand.
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