September is Blood Cancer Awareness Month, a chance to shine a light on a group of cancers that often don’t get the attention they deserve.
Did you know that blood cancer is the fifth most common type of cancer? Around 110 people are diagnosed every single day in the UK, and it’s also the third biggest cancer killer. Those are big numbers, but the good news is this: the more we talk about blood cancer, the more people will recognise the signs, get support, and feel less alone.
The Facts We Can’t Ignore
Blood Cancer UK have shared some eye-opening stats, which were echoed in our own Big WM Survey:
- 78% of people with blood cancer describe it as a “hidden cancer”.
- 31% need to visit their GP three or more times before getting a diagnosis.
- 58% aren’t aware of any support available when they’re first diagnosed.
- 47% don’t feel part of a community, even though most say it’s important to them.
That’s tough to read – but here’s the positive side: awareness changes things. By raising the profile of blood cancer, we can help people get diagnosed earlier, find the right support, and feel part of a caring community.
So Many Different Types
Blood cancer isn’t just one condition. It includes leukaemia, lymphoma, myeloma, myelodysplastic syndromes (MDS) and myeloproliferative neoplasms (MPN). With so many different names, it’s no wonder there’s confusion!
And for those with rare types, like Waldenstrom’s macroglobulinaemia (WM), finding clear, accurate information can be a real challenge. That’s why raising awareness matters so much.
What We’re Doing This Month
1. Let’s Raise Awareness
The more people who know about blood cancer, the better it is for everyone. This month, we’ll be sharing bite-sized info across our social channels – which you can repost to help spread the word.
We’ve also produced a Newly Diagnosed Booklet – a complete guide to understanding WM. It’s a great resource not only for those living with WM, but also for family, friends and healthcare professionals.
>> View our Newly Diagnosed Booklet
2. Spot the Symptoms
Many describe their diagnosis journey as an odyssey – it can take time to get answers, because everyone’s experience is different. But there are signs and symptoms to look out for.
Knowing them is vital both for spotting blood cancer early, and for monitoring changes if you’re already living with it. A new or worsening symptom may signal progression or a related condition – and that’s something to act on.
3. Be Part of Our Community
There are only around 4,000 people in the UK living with WM – that’s about the same as the capacity of Tamworth FC’s football ground! With such a small community, when it comes to really understanding what it’s like to live with WM, you are the experts.
The strength of our community lies in sharing experiences and supporting each other. Whether it’s popping into a Coffee and Chat, joining our Buddy Service, fundraising, or coming along to a Support Group, there are lots of ways to connect.
This month, we’re also launching our first CEO Catch Up and tickets will be available for our Patient Summits in Belfast on 3 October and Birmingham on 8 November.
>> Take a Look at Our Upcoming Events
Let’s Not Hide
Blood cancer may often be called a “hidden cancer,” but together we can make sure it’s anything but hidden this September. By raising awareness, sharing knowledge, and supporting one another, we can bring hope, encouragement, and light to everyone affected.
