We help people with Waldenstrom’s macroglobulinaemia (WM), a rare form of blood cancer, live longer, better-quality lives. We do this by providing essential resources, information and support for patients, families, and healthcare professionals.
Our Strategy
Everything we do is led by the needs of WM patients and their families. Following extensive consultation with our community, we developed a five-year strategy based around four core pillars. As an organisation, we aim to:
Be the expert voice of WM – the most credible leading-edge source.
Harness knowledge , data and evidence to drive equitable access and improve patient outcomes.
Empower patients to live well with WM and support them throughout their WM experience.
Be financially viable organisation with a strong foundation for achieving our goal.
Our latest Impact Report highlights all that we’ve achieved in the past year to help shape better care and stronger support for everyone affected by WM. From expanding our nurse-led support line and organising webinars, to producing more resources than ever and advocating on behalf of WM patients.
Our Board of Trustees, WMUK Team, and Patient Advisory Group work closely together to deliver support and resources for our WM community. If you think your have the skills and passion to help our community and deliver WMUK’s aims, find out more in our brochure.
Patient Advisory Group
The Patient Advisory Group (PAG) comprises 20 volunteers with direct experience of WM. Members review patient information, give feedback on new resources, and contribute to new programmes and long-term strategies.
The WMUK Board is responsible for the direction and governance of the organisation. Board members include experienced leaders and specialists who bring diverse expertise to steer WMUK towards achieving its mission.
WMUK’s team manages the day-to-day running of the charity and its activities. They develop resources, connect with healthcare professionals, and provide direct support to WM patients and their families.
We are looking for new trustees with legal, governance, finance, HR, and fundraising expertise to help strengthen our current board. If you would like to find out more about the role, please email info@wmuk.org.uk.