This #GivingTuesday, you can help us continue to be there for people affected by Waldenstrom's macroglobulinaemia. Head to our page to learn how you can support.
We've teamed up with 19 other rare and less common cancer charities in the 20 for 20 Challenge. Take on 20 challenges in 20 days this autumn and raise funds for WMUK to help us help others during this challenging time. Cancer doesn't stop for COVID, and neither do we.
WMUK welcomes the decision by the Scottish Medicines Consortium (SMC) to make ibrutinib available for WM patients in Scotland (with certain restrictions).
“The day-to-day challenges of living with a rare cancer that no-one seems to have heard of, let alone pronounce, has had an overwhelming effect on our lives.”
We’re really grateful to Ellie for sharing her thoughts and feelings since being diagnosed with WM earlier this year.
Vaccination against seasonal flu offers Waldenstrom's macroglobulinaemia (WM) patients, who often have weakened immune systems, some protection against the most common strains of flu. The flu vaccine is therefore recommended in all and preferably also family members of WM patients to keep the flu levels low in the community.
Our latest factsheet written by Dr Dima El-Sharkawi, WMUK trustee and Consultant Haematologist at the Royal Marsden Hospital, London, looks to answer some of the questions currently being asked of doctors and nurses in clinic consultations, regarding how much people with WM should still be avoiding others.
We are very keen to hear from any WM patients who are currently taking zanubrutinib in the UK. If you would be prepared to share your experiences to inform our work on a forthcoming NICE appraisal, please do get in touch.
Congratulations from everyone at WMUK to the incredible R4AR JOGLE 2020 cyclists on completing their John O’Groats to Land’s End challenge, having cycled through Storm Ellen and Storm Frances to raise nearly £40,000 for their chosen charities - WMUK, The Brain Tumour Charity and Headcase Cancer Trust, in memory of Rory Morrison and Alex Baigler.
We urgently need patients with Waldenstrom's macroglobulinaemia to join our Rory Morrison WMUK Registry - Quality of Life Project, collecting data around experiences of living with WM and helping us to better understand the WM landscape in the UK.
Advice for Waldenstrom's macroglobulinaemia (WM) patients from Dr Shirley D’Sa, WMUK trustee and lead WM clinician at UCLH, in response to the Government's plans to ease shielding for people who are shielding in England, from Monday 6 July.
