There are 15 support groups for people affected by Waldenstrom’s macroglobulinaemia in the UK. These groups meet both virtually and in-person, and are great ways to meet others in similar situations, share stories and ask questions.
Local & national, we're here for you
There are 11 regional support groups, and 4 support groups that cater to specific WM experiences, such as mums with WM and Family and Carers.
It doesn’t matter what stage of your WM journey you are in, the support groups have people from newly diagnosed, to those who have been living with the disease for many years. Most of the groups meet on Zoom, with some also organising small in-person meet-ups. Others also use WhatsApp as a form of support in between meetings. Please note: Although WMUK provides guidance to group leaders and helps promote them, all the WM support groups are volunteer-run, independent of WMUK. We cannot take responsibility for their activities, including information and advice given or other services they provide
Meeting others affected by WM in your area can help with feelings of isolation. They meet regularly online, and often will organise informal in-person gatherings in your area.
Contact them through this form or, alternatively, you can email us at support@wmuk.org.uk and we will direct you towards your local support group leaders.
In addition to local support groups for Waldenstrom’s macroglobulinaemia, there are also several non-regional support groups you may find helpful. You can contact them through this form.
Bing Neel Group
Andrew Tudor
Mums with WM Group
Debra Ziff
Supporters of people with WM Group
Elaine Clinton
Young WMers Group
Paul Davey
Contact WM Support Groups
Use the contact form on the link below to get in touch with regional & national WM support groups.