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Privacy statement

WMUK is committed to protecting your personal information and being transparent about what information we hold, whether you use our services, donate, volunteer, campaign or are an employee. We promise to respect any personal data you share with us, or that we get from other organisations, and keep it safe.

Developing a better understanding of people who support us is vital. It enables us to raise funds more cost-effectively and ultimately will help us achieve our ambitious strategy. This policy is written in accordance with the EU General Data Protection Regulation 2016. If you have queries about this policy, please contact us at WMUK, c/o CAN Mezzanine, 7-14 Great Dover Street, London, SE1 4YR or call us on 020 3096 7858.


Where we collect information about you

Information you give us directly

We will obtain personal information about you when you enquire or sign up for one of our events, make a donation, fundraise on our behalf, order products or services from us, seek assistance from us, engage with our social media, communicate with us, tell us your story, or otherwise give us personal information. We may also obtain personal information about you from an organisation working for us (for fundraising purposes).

Information collected indirectly

Your information may be shared with us by independent organisations, for example via fundraising sites like JustGiving or Virgin Money Giving. These independent third parties will only share your information when you have indicated that you wish to support WMUK and with your consent.

Information we collect when you use our website

Like most websites, we use ‘cookies’ and web server logs to provide us with information on how our site is used. Web server logs note the date and time of visits, the pages viewed, time spent on each page and on the site in total and the website visited before and after our own site. We use cookies to store limited information on your computer to provide this information to us. We use this information to enhance the functionality of our site and to give you the best experience we can. This is vital to ensure that our site can be found easily by people needing to access our information or wishing to donate to WMUK. Internet browsers will allow some control over most cookies through their settings and, should you wish, you can identify what cookies are on your device and remove them. Wherever possible we use aggregated or anonymous information which does not identify individual visitors to our website.

Information we rely on other organisations to provide

We may combine the information you provide us, with information available from external sources, to enhance our understanding of our supporters. By doing this, we are aiming to improve our marketing and fundraising efficiency and/or develop new products or services for our supporters which will help us to raise vital funds. The information we get from other organisations may depend on your privacy settings or the responses you have given them in the past. This information may come from the following sources:

Third party organisations

You may have provided permission for a company or other organisation to share your data with third parties, including charities. This could be when you buy a product or a service, register for an online competition or register on a website.

Information available publicly

This may include information found in places such as Companies House and other public records as well as information that has been published in articles / newspapers / online.

Social media

Depending on your settings or the privacy policies for social media and messaging services like Facebook, Twitter or WhatsApp, you might give us permission to access information from those accounts or services.

Support services for individuals affected by Waldenstrom’s macroglobulinaemia

We run services to provide support to individuals and their families affected by Waldenstrom’s macroglobulinaemia, and collect personal data in order to provide those services. This includes our national annual conference. The current Yahoo online group is not managed by WMUK and data protection is handled by Yahoo under their terms and conditions.

What information do we collect?

Personal information is any information that can be used to identify you. The type and quantity of information we collect depends very much on why you are providing it. Data protection law recognises that certain categories of personal information are more sensitive such as health information, race, religious beliefs and political opinions. We will not collect ‘sensitive personal data’ unless there is a clear reason for doing so, for example a challenging fundraising event where we may need specific information to ensure we provide the appropriate facilities or support to enable you to participate.



How do we use your information?

We will mainly use your data to:

  • further our charitable aims

  • provide you with the services, products or information you have requested from us

  • develop and improve the services, products or information we provide.

  • ask you to participate in research or supporter event satisfaction surveys (this is voluntary)

  • administer your donation

  • claim Gift Aid on your donations

  • support your fundraising efforts

  • keep a record of your relationship with us

  • ensure we know how you would like to be contacted by us.


Targeting communications

We will sometimes use profiling and screening techniques to analyse geographic, demographic and other information relating to you to better understand your interests and preferences so we can contact you with the most relevant communications. Personal details collected this way will only be used to provide you with information you would reasonably expect or have agreed to. We do this to understand more about the background and interests of the people who support us, allowing us to target our resources effectively. We may use additional information from publicly available sources where it is appropriate, which allows us to make suitable requests to individuals who may be able and wish to support us further. Profiling and screening means that you receive information that is appropriate, relevant and timely and which we hope will enhance your experience as a supporter. It means that we can raise more funds, sooner and more cost-effectively than we would have otherwise, essential in our fight against Waldenstrom’s macroglobulinaemia.


It is important to us that you receive the level of information about WMUK that suits you. In accordance with your wishes, we will contact you to let you know about the progress we are making, the latest research developments, fundraising opportunities so you can continue to help us with our charitable aims, or to ask for a donation or other support.

Email / text marketing

If you have actively provided your consent to us along with your email address and/or mobile phone number, we may contact you via email or text message. By subscribing to WMUK’s emails or opting in to email communications from us, you have granted us the right to use the email for marketing purposes. When we email you, we may place a tag (also known as ‘tracking pixel’) on the email we send out. This allows us to monitor the performance of our email marketing activity.

Post / telephone marketing

If you have provided us with your postal address or telephone number we may send you direct mail or telephone you about our work and opportunities to support us, unless you have told us that you would prefer not to receive such information.  We actively check telephone numbers against the Telephone Preference Service.  If your telephone number is listed on the TPS, we will only contact you by telephone if you have specifically consented to receive these calls.

Legitimate interest

Before using your data, we have to decide whether we have a ‘legitimate interest’ to do so. We think really carefully to make sure that your privacy and rights aren’t affected. Processing your data might mean analysing the information you have given us, in order that we are then able to offer you the most appropriate communications based on your preferences, such as direct marketing appeals. Of course our ‘legitimate interests’ aren’t more important than yours; we will only process your data or communicate with you if we think you want to hear from us, and we are sure that analysing what you have told us doesn’t infringe on your privacy. And at any time, we will respect your wishes if you don’t want us to process your data or communicate with you any further.

How you can manage communications from us

All our information and marketing emails have a clear ‘unsubscribe’ link which will remove you from future email communications. If you don’t want to hear from us, just let us know either when you provide your data, receive communications from us or contact us on 020 3096 7858 or at We will never sell or share your personal details to third parties for the purpose of marketing. However, if we run an event in partnership with another named organisation your details may need to be shared with them.

How we keep your data safe and who has access to it?

We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used, or for as long as we are legally required to keep it. We will never share, sell or swap your details with any third parties for the purposes of their own marketing or commercial purposes. In addition, from time to time we may exchange your personal information with other organisations for the purposes of fraud and credit risk reduction. We may also share information with our financial and legal advisors for the purposes of obtaining advice and protecting our legal rights. Some of our suppliers run their operations outside the European Economic Area (EEA). Although they may not be subject to the same data protection laws as companies based in the UK, we will take steps to make sure they provide a level of protection in accordance with GDPR. By submitting your personal information to us you agree with this transfer, storing and processing at a location outside the UK.

When we collect your personal information we use strict procedures and security features to prevent unauthorised access. However, no data transmission over the internet is 100% secure, including email. For this reason, we request that you do not send private information to us by email, in particular any financial information. If you do so it is at your own risk and WMUK will not be held liable for any breach in security. The WMUK website contains links to other websites belonging to third parties and we sometimes choose to participate in social networking sites. We may also include content from sites such as these on our website however, we do not have any control over the privacy practices of these websites. You should make sure that when you leave our site that you have read and understood the destination site’s privacy policy in addition to our own.

Keeping your information up to date

The accuracy of your personal information is important to us. You can edit the personal information we hold about you at any time, including your address and contact details, as well as changing your communication preferences by contacting us on 020 3096 7858 or by emailing

Use of “cookies”

What is a “cookie”?

Cookies may be used by the website to allow us to recognise you and your preferred settings, for example to store your ID for future sessions. This saves you from re-entering information on return to the website and makes the experience smoother.

Consent for cookies

The first time you access the website, you will be asked if you consent to receiving cookies. If you agree, cookies will be retained on your browser for that visit and for each time you subsequently access the website. You also have an option not to allow cookies, in which case any cookies you choose to disable will not be retained on your browser. If you want to opt out of using cookies in future then you can do so. It is important to note that if you change your settings and block cookies then our web site may not work so well. Further information on disabling cookies can be found in the table below.

How does WMUK use cookies?

Information provided by cookies can help us to understand the profile of our web visitors. This can help us to improve our services. See our full list of cookies below for more information.


EU Cookie Compliance module




This cookie sets whether the user has agreed to the Cookie Policy that appears in a popup when a visitor first comes to the site. The cookie has a duration of 100 days and does not store any personal data.

How do I disable it?

There is no way to disable this cookie, but you can disable cookies from your browser.

Google Analytics

_ga, _gat, _gid

The _ga cookie is typically written to the browser upon the first visit. If the cookie has been deleted by the browser operator, and the browser subsequently visits our site, a new _ga cookie is written with a different unique ID. In most cases, this cookie is used to determine unique visitors to our site and it is updated with each page view. Additionally, the _gid cookie is provided with a unique ID that Google Analytics uses to ensure both the validity and accessibility of the cookie as an extra security measure. The _gat cookie is set to allow us to track individual visitors and their use of the site. It is set when you first visit the site and updated on subsequent visits.We do not use Google Analytics to collect personal information, other than IP address, from our visitors.

To provide website visitors with more choice on how their data is collected by Google Analytics, Google Analytics offers the Opt-out Browser Add-on. The add-on communicates with the Google Analytics JavaScript (ga.js) to indicate that information about the website visit should not be sent to Google Analytics. Opt out.



When you watch a Youtube video embedded on our website, Youtube may add some cookies for storing user preferences and serve up related content or adverts within the video iframe.

Links to other websites

Our website may contain links to other websites run by other organisations. This policy applies only to our website‚ so we encourage you to read the privacy statements on the other websites you visit. We cannot be responsible for the privacy policies and practices of other websites even if you access them using links from our website. In addition, if you linked to our website from a third-party site, we cannot be responsible for the privacy policies and practices of the owners and operators of that third-party site and recommend that you check the privacy policy of that third party site.

Your rights

Under the GDPR you have the right to:

  • request a copy of the information we hold on you

  • update or amend the information we hold about you if it is wrong

  • change your communication preferences at any time

  • ask us to remove your personal information from our records

  • restrict the processing of your personal data

  • question a decision made about you by automated means

  • raise a concern or complaint about the way in which your information is used

If you wish to find out more about these rights, or obtain a copy of the information we hold about you, please contact us at: WMUK, c/o CAN Mezzanine, 7-14 Great Dover Street, London, SE1 4YR. Telephone 020 3096 7858 Email:

Changes to this policy

Any changes we may make to this policy in the future will be posted on this website so please check this page occasionally to ensure that you’re happy with any changes. If we make any significant changes, we’ll make this clear on this website. We keep this policy under regular review. This policy was last updated in April 2020.

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