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Support Groups

WMUK oversee a total of 18 virtual support groups, that are there to provide emotional and community support to both patients and their families/friends.

 

The support groups cover a large area of the UK, as well as ones which are specific to Waldenstrom's macroglobulinaemia related conditions and specific cohorts of people such as the peripheral neuropathy group or the Mums with WM group.

It doesn't matter what stage of you and your WM are in - the support groups have people from newly diagnosed, those on active monitoring, and people on treatment or in clinical trials. They really are for everyone.

The support group meetings are held virtually over Zoom and many of them also use WhatsApp as a form of continued support and communication. Some support groups are now meeting in person in small, informal gatherings.

 

Please note: WMUK provides support and assistance to local groups, but they are volunteer led groups and we cannot take responsibility for their activities, including information and advice they may give, and any other services they may provide.
 

Want to join a group?​

One of WMUK’s aims within 2023, is to ensure that we have a robust patient support pathway that recognises and addresses both the clinical and holistic needs of WM patients and their families/friends.


Click on the map and the buttons below to get in touch with a support group or alternatively you can email us at support@wmuk.org.uk and we will direct you towards your local support group leaders.

 

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North
West
Group

Andrew Tutor

North
East
Group

Lisa

Beeby

Island of
Ireland
Group

Cormac Bowell

Wales
Group

Fleur Williams

South
West
Group

Mary Giles

South
East
Group

Lucy Gray

London
Group

Debra Ziff

East
Anglia
Group

Susan Banard

Home Counties
Group

Catherine Pettifer

East
Midlands
Group

David Lee

West
Midlands
Group

Olive Powell

BAD
WMers
Group

Bob Perry

Scotland
Group

Elaine Clinton

Non Regional Support Groups:

 

Mums with WM Group

Debra Ziff

Peripheral Neuropathy Group

Richard Chater

Bing Neel Group

Andrew Tudor

Young WMers Group

Supporters of people with WM Group

Non-regional
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