Support Line: 0300 373 8500
There are 15 support groups for people affected by Waldenstrom’s macroglobulinaemia in the UK. These groups meet both virtually and in-person, and are great ways to meet others in similar situations, share stories and ask questions.
There are 11 regional support groups, and 4 support groups that cater to specific WM experiences, such as mums with WM and Family and Carers.
It doesn’t matter what stage of your WM journey you are in, the support groups have people from newly diagnosed, to those who have been living with the disease for many years.
Most of the groups meet on Zoom, with some also organising small in-person meet-ups. Others also use WhatsApp as a form of support in between meetings.
Please note: Although WMUK provides guidance to group leaders and helps promote them, all the WM support groups are volunteer-run, independent of WMUK. We cannot take responsibility for their activities, including information and advice given or other services they provide
Want to join a local group?
Meeting others affected by WM in your area can help with feelings of isolation. They meet regularly online, and often will organise informal in-person gatherings in your area.
Contact them through this form or, alternatively, you can email us at support@wmuk.org.uk and we will direct you towards your local support group leaders.
Elain Clinton
Andrew Tudor
David Lee
Linda Reynold
Keith Pritchard
Keith Melford
In addition to local support groups for Waldenstrom’s macroglobulinaemia, there are also several non-regional support groups you may find helpful. You can contact them through this form.
Andrew Tudor
Debra Ziff
Paul Davey
Use the contact form on the link below to get in touch with regional & national WM support groups.