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Share your story

Patients are at the heart of what we do here at WMUK, and we really would be nothing without you and your stories to bring the charity and our cause to life.

Whether you’re a newly diagnosed patient who wants to share your experience or you’ve been living well with Waldenstrom's macroglobulinaemia for years, the one thing we’ve learned is that people always want to hear about others experiences. Personal stories highlight the experience of people affected by WM, raise awareness of the signs and symptoms and can encourage and inspire other people affected. If you would like to share your real-life story, please get in touch with us below.

With your permission, we will share your story on our website, on social media and sometimes even in the press. By continuing to raise awareness of WM, we can help to reach even more patients like you.

Patient stories

Read our patient stories

WM patient, Vicky
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Vicky has been living with WM for 12 years, managing the disease without going on treatment. However, when her most recent blood tests showed a change in her disease, her world turned upside down.

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Vern's route to diagnosis wasn't a quick or straightforward one. For a good few years, he brushed off symptoms - pins and needles in his toes, tiredness - as being down to getting a bit older. It was only when he realised his walking was affected that he finally went to the doctors.

WM patient, Vern out walking in the countryside
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Patient stories
WM patient, Rebecca


"I hope that by sharing a positive experience, I’ll offer you the reassurance I didn’t have."

WM patient, Bob


"My focus became totally about positivity. I promised myself that I would do something every single day to either help someone else or help myself, something positive!"

WM patient, Lucy


"Getting a second opinion gave me reassurance that I was on the right path, and renewed confidence."

WM Patient, Mary


"My diagnosis wasn’t straight forward. Whilst in A&E, the nurse suggested I see my GP and get a bone density scan. Following the results, I was referred to rheumatology where they took blood samples. It was after seeing my blood count that I was referred to haematology."

WM patient, Rob walking in the Himalayas


"Looking around at endless peaks from Ganja-La pass, all one’s troubles seemed small in the big scale of things; and suddenly life felt just as amazing with WM as it was before."

WM patient, Ellie


"I was diagnosed with Waldenstrom's macroglobulinaemia in February 2020, aged 39. At the time, enjoying juggling family life as a busy wife and mum to two young daughters, aged 6 and 3."

WM patient, Peter


"Exercise benefits not just my physical body, but also (more importantly) my mental state"

WM patient stood underneath the sign at Land's End


"It is possible to go back and enjoy the activities you took part in before having WM treatment."

Waldenstrom's macroglobulinameia patient, Keith


"Reaching out to WMUK and other people affected by WM really helped me. It was reassuring, especially so early on in my own diagnosis."



"It takes a village to care for a cancer patient"

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