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This downloadable guide is designed to help people living with Waldenstrom’s macroglobulinaemia (WM) – as well as their families, friends, and carers – better understand the wide range of symptoms and related conditions that may occur with this rare blood cancer.
Written by WMUK in collaboration with clinical experts and people affected by WM, this resource offers clear, practical information about potential symptoms, associated conditions like peripheral neuropathy, cold agglutinin disease, and amyloidosis, and what treatment options may be available. It also includes tips on when to seek medical advice, what questions to ask your healthcare team, and how to access further support.
The guide has been shaped with input from both WMUK’s Clinical Advisory Board (CAB) and Patient Advisory Group (PAG) to ensure it reflects both expert clinical insight and real-world patient experience.
Whether you’re newly diagnosed, navigating symptoms, or supporting someone with WM, this guide provides reassurance, clarity, and up-to-date information to help you make informed decisions and live well with WM.
At the time of writing this guide, the WMUK Clinical Advisory board included Dr Harriet Scorer, Dr Helen McCarthy, Charlotte Bloodworth, Dr Dima El-Sharkawi, Dr Charlampia Kyriakou, & Professor Michael Lunn.
